Information and support: Carers of children with life-limiting conditions
If you, or someone you know, needs support caring for a child with a life-limiting condition, the following organisations may be able to help.
Together for Short Lives
Together for Short Lives provides information and local support for families, carers of children with life-threatening and life-limiting conditions.
Phone: 0808 8088 100
Webchat available via website.
Contact
Contact provides support, advice and information to families with disabled children under 25 and can also provide help for carers of disabled children.
Phone 0808 808 3555
Scope
Scope works with disabled people, of all ages, and their families, across England and Wales, offering practical, everyday support.
Phone: 0808 800 3333
Hope
Hope supports young people aged between 5 and 25 across the UK when a close family member is diagnosed with a life-threatening illness.
Sibs
Sibs support siblings who are growing up with or who have grown up with a brother or sister with any disability, long term chronic illness or life limiting condition.
Marie Curie
Marie Curie provides confidential support and practical information on all aspects of terminal illness.
Phone: 0800 090 2309
Bereavement and Child Bereavement
If you have also been affected by bereavement, organisations listed on our Bereavement support page may be able to help.