How do wheelchair users weigh themselves?
When wheelchair users want to weigh themselves they have to first find accessible scales.
When Lizzie posted on Facebook that she hasn鈥檛 been able to weigh herself for 22 years, including through three pregnancies, it sparked our interest about
access to scales.
Gillian also told us she鈥檚 been trying to keep check of her weight during a health kick but it鈥檚 been months since she was last able to get on scales.
And Dr Georgie Budd offers some thoughts and suggestions around this dilemma.
We talk emotional support animals after an incident in Florida where one particularly scary example was banned from a ball game.
And the cruelly named Elephant Man, Joseph Merrick, is depicted on stage like never before courtesy of young actor Zak Ford-Williams who has cerebral palsy but doesn't use prosthetics or alter his facial appearance.
Recorded and mixed by Dave O鈥橬eill. Produced by Alix Pickles, Drew Hyndman, Emma Tracey and Beth Rose. Editor is Damon Rose, and exec editor is Jonathan Aspinwall.
"Alexa, play Access All from the 麻豆社" is one way of hearing our latest show, and making sure you subscribe on 麻豆社 Sounds is another. email the presenters
Nikki Fox and Emma Tracey now:
accessall@bbc.co.uk
Transcript
Access All 鈥� episode 73
Presented by Nikki Fox and Emma Tracey
听
听
NIKKI-听听听听听听听听听听听听听 So, I was on The One Show last night. It was one of those late night, early mornings for the pod, Nikki鈥檚 feeling a bit ropey. I almost felt like I was hungover but I didn鈥檛 drink. But it was a good show. But lovely Alex Jones, who鈥檚 the main presenter of The One Show, Em, it was Alex Jones and Lauren Laverne, two brilliant woman.
EMMA-听听听听听听听听听听听听 Oh wow, on the same show!
NIKKI-听听听听听听听听听听听听听 Yeah, I know. I was the consumer filling in a Laverne-Jones sandwich.
EMMA-听听听听听听听听听听听听 That actually is a fantastic sandwich to be in.
NIKKI-听听听听听听听听听听听听听 Isn鈥檛 it? But Alex, yeah she came into the script meeting 鈥� oh she鈥檚 so lovely 鈥� and she looked very pale and she had a terrible, terrible migraine. And she鈥檇 tried to get rid of it all morning and she said, 鈥業 don鈥檛 know whether I should have actually come in today鈥�. I actually thought she鈥檇 probably have to go home. But she didn鈥檛. She made it through the day and she was on that sofa, and she pulled it out the bag and she was brilliant. And it just got me thinking what we have to do to get through a day, the strength.
EMMA-听听听听听听听听听听听听 Yeah.
NIKKI-听听听听听听听听听听听听听 And I think a lot of disabled will feel this too. We do tend to have other medical problems sometimes.
EMMA-听听听听听听听听听听听听 Well, I think disabled people take a lot more energy to do things, depending on impairment.
NIKKI-听听听听听听听听听听听听听 Yeah.
EMMA-听听听听听听听听听听听听 You鈥檝e mentioned you鈥檙e not feeling brilliant today, and it will have taken you a lot more energy to get up, get in your car and get here.
NIKKI-听听听听听听听听听听听听听 And a lot more make-up, Emma Tracey.
EMMA-听听听听听听听听听听听听 A lot more make-up [laughs]. I mean, as a blind person getting to work takes a lot. You have to speak to lots of different people who are helping you maybe. You鈥檝e maybe got to navigate roadworks etc. etc. You鈥檝e done an hour鈥檚 commute, you almost feel like you鈥檝e done half a day鈥檚 work sometimes.
NIKKI-听听听听听听听听听听听听听 Yeah, I know.
EMMA-听听听听听听听听听听听听 Also for me it鈥檚 the anxiety as well, that takes a lot of energy. But I think we鈥檙e just experts at it.
NIKKI-听听听听听听听听听听听听听 Basically.
EMMA-听听听听听听听听听听听听 I just want to know what other people have done to push through. I want to know have you done something with a dislocated hip? Have you done something with mental health that鈥檚 been worse than ever before? Have you done something that pushed through something? I鈥檓 not saying you should. I鈥檓 not condoning it.
NIKKI-听听听听听听听听听听听听听 No.
EMMA-听听听听听听听听听听听听 But have you done something? Tell us.
NIKKI-听听听听听听听听听听听听听 Once when I worked for a call centre I dislocated my knee at lunchtime, popped it back in, and went back to work.
EMMA-听听听听听听听听听听听听 Oh!
NIKKI-听听听听听听听听听听听听听 I was quite proud of myself for being a tough cookie.
EMMA-听听听听听听听听听听听听 That is really, really impressive.
NIKKI-听听听听听听听听听听听听听 But I needed the money and I couldn鈥檛 be docked half a day at the time so I was like, the knee鈥檚 going back in. Come on, let鈥檚 sing our own praises.
EMMA-听听听听听听听听听听听听 Let鈥檚 get in there.
NIKKI-听听听听听听听听听听听听听 Let鈥檚 big ourselves up.
EMMA-听听听听听听听听听听听听 How amazing disabled people are to deal with a life that鈥檚 not set up for us by just pushing on through: accessall@bbc.co.uk.
NIKKI-听听听听听听听听听听听听听 Right Em, I鈥檓 not feeling too cracking today so shall we push through?
EMMA-听听听听听听听听听听听听 Let鈥檚 do it.
MUSIC-听听听听听听听听听听听 Theme music.
NIKKI-听听听听听听听听听听听听听 It鈥檚 Access All, your weekly disability and mental health podcast on the 麻豆社. But even if you鈥檙e not disabled stay with us, because we are for everyone who鈥檚 interested in people, their stories and having a laugh. I鈥檓 Nikki Fox and I鈥檓 in London.
EMMA-听听听听听听听听听听听听 And I鈥檓 Emma Tracey and I鈥檓 in Edinburgh.
NIKKI-听听听听听听听听听听听听听 A question Emma Tracey, a bit of a rude one, but do you weigh yourself often?
EMMA-听听听听听听听听听听听听 I鈥檓 not answering that. It鈥檚 none of your business and none of anybody else鈥檚 business, and yes, it is a rude question.
NIKKI-听听听听听听听听听听听听听 [Laughs]
EMMA-听听听听听听听听听听听听 Do you weigh yourself?
NIKKI-听听听听听听听听听听听听听 All right, all right, I don鈥檛 love chatting about weight and scales. But actually there鈥檚 a point to it because some wheelchair users haven鈥檛 had the opportunity to get weighed for months or even years. It鈥檚 more of a problem than you might think. I know because I haven鈥檛 been weighed either.
EMMA-听听听听听听听听听听听听 Hmm, looking forward to hearing more about that later. And also later we鈥檝e got the Elephant Man and alligators; which is a subject that wouldn鈥檛 strike you as being a disability thing but all will be revealed.
NIKKI-听听听听听听听听听听听听听 We鈥檙e on your Alexa device. Just say, 鈥楢sk the 麻豆社 for Access All鈥� and you鈥檒l get our latest show. Or grab your phone and subscribe to us on 麻豆社 Sounds or wherever you get your podcasts.
听听听听听听听听听听听听听听听听听听听听听听听听听 Emma, I know I鈥檝e asked you this already and it鈥檚 a very personal question, and I don鈥檛 like asking you, but there is a reason.
EMMA-听听听听听听听听听听听听 Hmm?
NIKKI-听听听听听听听听听听听听听 How often, Emma Tracey, do you weigh yourself?
EMMA-听听听听听听听听听听听听 Well, as I said earlier, it鈥檚 none of your business.
NIKKI-听听听听听听听听听听听听听 How rude! [Laughs]
EMMA-听听听听听听听听听听听听 But I would say whenever I want. It doesn鈥檛 actually cost me a thought. I have talking weighing scales in my bathroom. It鈥檚 small, it鈥檚 not much more expensive than your average, and I just step on it whenever I get the urge. I try not to do it too often, but it鈥檚 just pretty easy.
NIKKI-听听听听听听听听听听听听听 It鈥檚 there when you need it.
EMMA-听听听听听听听听听听听听 Yeah, it鈥檚 there when I need it. How about you?
NIKKI-听听听听听听听听听听听听听 Well, I鈥檓 not into the idea of weighing too much. I can kind of tell how things fit by the clothes and the zips that I鈥檝e broken. But I haven鈥檛 been on the old scales for years because as somebody that sits down, I cannot stand up independently without clinging on for dear life to someone else, I need those weighing scales that have got the chair. So, yeah, I couldn鈥檛 tell you what I weigh, Emma Tracey.
EMMA-听听听听听听听听听听听听 Well, I wouldn鈥檛 ask you and I don鈥檛 want to know anyway. But that鈥檚 really interesting. Not having access to scales, it鈥檚 not a shocker and I鈥檓 not surprised because everything is just so inaccessible, isn鈥檛 it?
NIKKI-听听听听听听听听听听听听听 I know, but the amount of times you go to an appointment, and say I had to have a pre-op, and it鈥檚, 鈥楬ow much do you weigh?鈥� And I was like, 鈥業 have no idea鈥�. They鈥檙e like, 鈥榃ell, let鈥檚 weigh you. Can you get on the scales?鈥� And I鈥檓 like, 鈥楬ave you got the seated scales?鈥� and they鈥檙e like, 鈥楴o, can you stand up?鈥� And I鈥檓 like, 鈥楴o, no I can鈥檛, not if you want an accurate one anyway. Not unless you want me and Libby standing on the scales together with my neck lying back鈥�.
EMMA-听听听听听听听听听听听听 It will surprise no one that I鈥檝e been geeking out on accessible weighing scales and what types there are and stuff.
NIKKI-听听听听听听听听听听听听听 No, doesn鈥檛 surprise me at all.
EMMA-听听听听听听听听听听听听 Doesn鈥檛 surprise you, no? So, obviously there are the seated ones that you talked about. I know there are special bed ones as well. There are ones that are like train tracks on the ground that you can carry, dieticians etc can carry around in a bag, and you roll across them. There鈥檚 stuff that you can attach to your hoist as well. But I did look around and the cheapest I could see of any way of weighing someone who can鈥檛 stand independently on regular scales was about 拢600.
NIKKI-听听听听听听听听听听听听听 Woah!
EMMA-听听听听听听听听听听听听 So, really, really pricey, isn鈥檛 it?
NIKKI-听听听听听听听听听听听听听 That doesn鈥檛 surprise me in the slightest, Emma Tracey, it doesn鈥檛. Well, Lizzie鈥檚 got the same problem as me of getting hold of suitable scales. And she is on the line right now to tell us her story. Hello Lizzie.
LIZZIE-听听听听听听听听听听听听 Hi.
NIKKI-听听听听听听听听听听听听听 So, so lovely to have you on. And of course at times like this we need an expert in these situations, Jeremy Vine has got his resident medical guru, Dr Sarah Jarvis; we have disabled GP, Dr Georgie Budd. She鈥檚 back again with all of her wisdom and her knowledge. Hello Georgie.
GEORGIE-听听听听听听听 Hi guys, how are you doing?
NIKKI-听听听听听听听听听听听听听 Thanks so much guys for joining us. Now, Lizzie, I鈥檒l start with you. You鈥檙e 37 and you鈥檙e a mum of three, and you鈥檝e got a degenerative muscle related impairment and you鈥檙e also a wheelchair user. When was the last time that you were weighed? And what were the circumstances, if you don鈥檛 mind me asking?
LIZZIE-听听听听听听听听听听听听 I think the last time I was weighed kind of professionally or any kind of healthcare setting was about 22 years ago. I think I was about 15. I had to have an endoscopy under general anaesthetic and I remember them telling me to sit on the chair scales.
EMMA-听听听听听听听听听听听听 22 years ago! That鈥檚 incredible, isn鈥檛 it? Am I the only one surprised by this and shocked?
NIKKI-听听听听听听听听听听听听听 No, I鈥檓 not surprised. I鈥檓 not surprised at all because I can鈥檛 even remember the last time I saw a chair weighing scale thingmajig, so it doesn鈥檛 surprise me at all. Have you not been weighed since?
LIZZIE-听听听听听听听听听听听听 No, nothing. And I鈥檝e had three pregnancies, epidurals, all sorts of medical things since then.
NIKKI-听听听听听听听听听听听听听 When you鈥檙e pregnant 鈥� Emma you probably know this better 鈥� don鈥檛 they need to weigh you when you鈥檙e pregnant?
EMMA-听听听听听听听听听听听听 I was weighed loads of times when I was pregnant. So, Georgie it must be sort of important, and the epidural as well?
GEORGIE-听听听听听听听 Yeah. I mean, there鈥檚 a lot of things that we use weight for in health: anaesthetics, and drug dosing, and just to keep an eye on it as well for someone鈥檚 general health. During pregnancy for example if someone was losing weight I as a GP would actually be really quite concerned. But if I don鈥檛 know the only thing that we do have to rely on is the way that people鈥檚 clothes fit. Well, obviously that changes in pregnancy anyway. We know that being overweight is a risk factor for many, many diseases. Weight comes into one of the measures that we鈥檝e always used, which is BMI. But BMI is actually quite flawed in itself. So, there are a number of ways that weight is important to health and factors in.
NIKKI-听听听听听听听听听听听听听 I mean, Lizzie what did you do when you had to have your epidural? Did you just have to guess your weight?
LIZZIE-听听听听听听听听听听听听 Yeah, I think any time they鈥檝e asked me recently is like for MRIs or CT scan, epidural, they鈥檝e said, 鈥榃hat do you weigh roughly?鈥� and I was like, 鈥業 don鈥檛 know鈥� just kind of guessing. But again, like with BMI, you have to kind of compare it with height; I鈥檝e no idea how tall I am.
NIKKI-听听听听听听听听听听听听听 Yeah, totally the same.
EMMA-听听听听听听听听听听听听 Why do you not have any idea how tall you are? Is that because standing up and being weighed straight down is an issue?
LIZZIE-听听听听听听听听听听听听 I come from a very tall family so I would imagine if I hadn鈥檛 been a wheelchair user I would probably be at least 5鈥�10, 5鈥�11. My mum is, so we鈥檙e all like giants in our family. I think I鈥檓 about 5鈥�4 because I think I had to measure myself roughly for my graduation gown, so I lay on the floor and they measured me along the floor.
NIKKI-听听听听听听听听听听听听听 Yeah. Well, we spoke to Gillian Murphy from Beckenham earlier, and she sent us this message on X, formerly known as Twitter. Gillian鈥檚 a wheelchair user as well and an amputee, and she told us she鈥檚 overweight and she is trying to get healthier, but she鈥檚 got no way of monitoring her weight.
GILLIAN-听听听听听听听听 I was last weighed at the amputee centre six months ago, which is the only place I have access to sit-on scales. Yes, I have a weight problem. I am addressing it. But I鈥檇 like to be weighed weekly so I know which direction I鈥檓 heading in with my weight. But I can鈥檛 because there aren鈥檛 any locally. My GP doesn鈥檛 have access to any. I鈥檝e tried the weighing machine in Boots because I thought well, maybe that鈥檚 a bit more professional than mine. That鈥檚 putting my wheelchair behind me, standing up on one leg and praying. So, I鈥檓 like if you鈥檙e going to give way don鈥檛 do it in Boots, it isn鈥檛 the place. And that still wasn鈥檛 registering properly at all.
听听听听听听听听听听听听听听听听听听听听听听听听听 I get quite, I don鈥檛 know if demoralised is the right word, but I get quite frustrated that I can鈥檛 see numbers to reflect how my journey is going. That would encourage me so much more. I understand they鈥檙e an expensive resource, but if a group of surgeries clubbed together to start with, and then maybe if they got used more, more would become available. I don鈥檛 know. It鈥檚 like we鈥檙e always being told we have to lose weight but we鈥檙e not helped, we鈥檙e not given the tools.
NIKKI-听听听听听听听听听听听听听 Well, that鈥檚 a very reasonable suggestion from Gillian there about the surgeries clubbing together. And also what she鈥檚 saying about being weighed, it鈥檚 that added motivation when you lose weight to see a couple of pounds drop off. It helps you for the following week, doesn鈥檛 it? I mean, Dr Georgie is getting weighed for someone like Gillian, it is important, isn鈥檛 it?
GEORGIE-听听听听听听听 I think it really is, especially in terms of weight management, which is so much more difficult from a chair anyway for a number of reasons: you鈥檙e not using your big leg muscles anymore so you鈥檙e not burning as many calories; access to actually exercising as a disabled person is less than I would like it to be; access to gyms, access to swimming pools, if you鈥檙e not somebody that鈥檚 going to lift weights and do hand cycling 鈥� all of these things are a significant issue. And if you鈥檙e trying to lose weight and you don鈥檛 have access to something to see if what you鈥檙e doing is working one, it鈥檚 poor for motivation. I don鈥檛 believe in weighing every week.
NIKKI-听听听听听听听听听听听听听 No.
GEORGIE-听听听听听听听 However, I understand why people do it in Slimming World or whatever.
NIKKI-听听听听听听听听听听听听听 Yeah. I was just going to quickly ask Lizzie, does some of this ring true to you? Would you like to know your weight so that you can maintain the healthiest lifestyle possible?
GEORGIE-听听听听听听听 Yeah, exactly. And you can鈥檛 just rely on how clothes fit all the time because sizes differ incredibly, even the same shop. I鈥檝e got two pairs of jeans from Tesco, both the same size, one of them fits fine and other one鈥檚 really tight. So, you can鈥檛 rely on that and how they fit to know if you鈥檝e put on weight or if you鈥檝e lost weight because everything is different and it鈥檚 not a reliable method. And obviously clothes stretch the more you wear them.
EMMA-听听听听听听听听听听听听 Yes, absolutely. I mean, lots of people have gone to lots of lengths to weigh themselves. Seeing as there鈥檚 no actual scales easily accessible for people to use people started coming up with their own DIY methods, haven鈥檛 they, Nikki?
NIKKI-听听听听听听听听听听听听听 You鈥檙e right, Emma. Christian is a wheelchair user in the US. He was so keen to weigh himself that he came up with an interesting way of doing it using regular domestic scales:
[Clip]
CHRISTIAN-听听听 I got a piece of wood, a plank going across the scale. What I鈥檓 going to do is I鈥檓 going to roll onto the scale and pop a wheelie. All my weight is going to be on this plank. It鈥檚 like a homemade wheelchair scale, guys. And then whatever the weight is you want to subtract how much your wheelchair weighs. So, for me my wheelchair weighs 35lbs. You just pop a wheelie, square it up, get on the board, do another wheelie, hold it, hold it and get off.
[End of clip]
NIKKI-听听听听听听听听听听听听听 [Laughter] Christian, he鈥檚 cracked it!
EMMA-听听听听听听听听听听听听 He鈥檚 cracked it! But you have to be able to pop a wheelie.
NIKKI-听听听听听听听听听听听听听 I was going to say, I can鈥檛 pop a wheelie in my old scooter.
EMMA-听听听听听听听听听听听听 [Laughter] But that鈥檚 all right for people who can pop a wheelie, isn鈥檛 it, do you know what I mean?
NIKKI-听听听听听听听听听听听听听 Oh my goodness. Ladies, have you come up with any interesting ways of trying to weigh yourselves? Handstands?
LIZZIE-听听听听听听听听听听听听 I鈥檝e sat on my bathroom scales trying to, going from all fours on the floor, to then kind of touching the scales to turn it on, and then sitting down really quickly, lifting my feet up, which is like a ridiculous yoga pose, and trying to balance and not fall back and smack my head on something.
EMMA-听听听听听听听听听听听听 It sounds like a nightmare.
LIZZIE-听听听听听听听听听听听听 It鈥檚 difficult.
EMMA-听听听听听听听听听听听听 Absolutely sounds like a nightmare. Can I give the last word to Henrietta who got in touch with us by email? And she said that, surprise, surprise, cannot get access to suitable scales, has to go to her local wheelchair services. How far away is your local wheelchair services? Has to transfer from her chair, put the chair on the scales, put the chair off the scales, transfer back into her chair, roll back on the scales to weigh herself. And with opening times of wheelchair services she actually has to take time out of work to go and weigh herself.
NIKKI-听听听听听听听听听听听听听 Oh!
EMMA-听听听听听听听听听听听听 I mean, talk about disability admin, honestly.
NIKKI-听听听听听听听听听听听听听 [Sighs]
EMMA-听听听听听听听听听听听听 Yeah, seriously. I spoke to Ability Superstore, a big shop who serve 100,000 people a year, and they said in the 13 years of trading they鈥檝e never been asked by a punter for accessible scales because they think they鈥檇 be too pricey and too big to have.
NIKKI-听听听听听听听听听听听听听 Well, of all the things you need to get 鈥� Dr Georgie touched on this 鈥� there鈥檚 a lot of stuff that鈥檚 not particularly accessible as ways to get fit, like going swimming and all that kind of stuff. So, disabled people often have to buy their own kit, like arm bikes and all that kind of stuff. It鈥檚 all way pricey. The last thing you want to spend a load of dosh on is a flipping weighing scale. But after this item I鈥檓 kind of worried that people are going to start taking their life into their own hands trying to weigh themselves.
EMMA-听听听听听听听听听听听听 Popping wheelies.
NIKKI-听听听听听听听听听听听听听 [Singing] popping wheelies. Oh, thank you so much, Lizzie for joining us, and thank you Dr Georgie as well. It鈥檚 been great to hear from both of you.
LIZZIE-听听听听听听听听听听听听 Go to the vets as well, that鈥檚 another option.
NIKKI-听听听听听听听听听听听听听 Go to the vets did you say?
LIZZIE-听听听听听听听听听听听听 Get on the dog scales [laughter].
NIKKI-听听听听听听听听听听听听听 That鈥檚 right, the dogs have got scales but we ain鈥檛.
EMMA-听听听听听听听听听听听听 I mean, it鈥檚 very important to weigh your Labrador. Bye ladies.
NIKKI-听听听听听听听听听听听听听 Don鈥檛 worry about your disableds, just weigh your dog.
EMMA-听听听听听听听听听听听听 You can weigh Buddy but not you, your assistance dog.
NIKKI-听听听听听听听听听听听听听 Thanks guys, thank you Georgie as well.
GEORGIE-听听听听听听听 No worries.
LIZZIE-听听听听听听听听听听听听 Bye.
NIKKI-听听听听听听听听听听听听听 Hey Em?
EMMA-听听听听听听听听听听听听 Hmm?
NIKKI-听听听听听听听听听听听听听 You know how you just love trying to make out that my unruly rescue dog, very loving rescue dog, Buddy, you make him out to be my assistance dog, just because I鈥檓 disabled?
EMMA-听听听听听听听听听听听听 Yes, because you鈥檙e disabled and you鈥檝e got a dog, so ergo.
NIKKI-听听听听听听听听听听听听听 Well, I鈥檓 like no Em, no.
EMMA-听听听听听听听听听听听听 [Laughs]
NIKKI-听听听听听听听听听听听听听 If he鈥檚 going to do anything he鈥檚 going to eat my socks; he鈥檚 not going to take them off my feet.
EMMA-听听听听听听听听听听听听 Okay. But why are we talking about this now?
NIKKI-听听听听听听听听听听听听听 Well, we鈥檙e chatting about support animals, that鈥檚 why. It was my link into it, Ems, a bit like assistance animals who provide that calming support. Because I wanted to tell you about Wally. Okay? Because there is one who goes by the name of Wally, or to be鈥�
EMMA-听听听听听听听听听听听听 Is he a support animal or an assistance animal?
NIKKI-听听听听听听听听听听听听听 He is a support animal, so there鈥檚 a difference. I suppose Buddy could be a support animal because he鈥檚 very loving actually. But he鈥檚 a support animal. I鈥檓 going to give his full name. his full name is Wallygator.
EMMA-听听听听听听听听听听听听 That鈥檚 a long name for a dog, isn鈥檛 it?
NIKKI-听听听听听听听听听听听听听 No, Wally is an alligator, Em.
EMMA-听听听听听听听听听听听听 I mean, a support alligator?
NIKKI-听听听听听听听听听听听听听 He鈥檚 a support alligator.
EMMA-听听听听听听听听听听听听 So, where is Wally then? Ha-ha-ha, get it?
NIKKI-听听听听听听听听听听听听听 Where鈥檚 Wally? [Laughs] I like that. He鈥檚 in the States. Last week Wally was reportedly denied entrance to see the Philadelphia Phillies play the Pittsburgh Pirates in a major league baseball match.
EMMA-听听听听听听听听听听听听 I thought it was some sort of alligator Olympics or something like that.
NIKKI-听听听听听听听听听听听听听 No, no.
EMMA-听听听听听听听听听听听听 With pirates and stuff, water related.
NIKKI-听听听听听听听听听听听听听 No, you had me right, an alligator.
EMMA-听听听听听听听听听听听听 So, he was trying to get into baseball game, the alligator was?
NIKKI-听听听听听听听听听听听听听 Well, it wasn鈥檛 the alligator obviously, it was his master [laughs]. What do you call, what do you call the person with the support animal?
EMMA-听听听听听听听听听听听听 Handler?
NIKKI-听听听听听听听听听听听听听 His handler, yeah, wanted to take Wally into the baseball match. He was denied entrance, understandably. But apparently didn鈥檛 stop him from giving loads of hugs outside the Philadelphia stadium.
EMMA-听听听听听听听听听听听听 Hugs?!
NIKKI-听听听听听听听听听听听听听 Hugs.
EMMA-听听听听听听听听听听听听 Oh I know, is he one of those mascot alligators? Is it actually just a suit that somebody wears?
NIKKI-听听听听听听听听听听听听听 No, it鈥檚 an actual alligator.
EMMA-听听听听听听听听听听听听 But how do you hug an alligator? What size is it? What was it in? What does it feel like? I need to know.
NIKKI-听听听听听听听听听听听听听 I know. I would actually like to hug an alligator. Wally lives apparently with Joie Henney who lives in Pennsylvania. Now, Joie apparently, like my Budster, rescued Wally from Disneyland in 2015. He says Wally is his best buddy, and he loves giving kisses. My goodness, the mouth opens.
EMMA-听听听听听听听听听听听听 With the teeth?
NIKKI-听听听听听听听听听听听听听 Yeah, apparently. Probably a bit like mine.
EMMA-听听听听听听听听听听听听 I mean, I can鈥檛 see, but I鈥檝e been told on the grapevine that alligators have a lot of big teeth.
NIKKI-听听听听听听听听听听听听听 They鈥檙e quite scary and they鈥檝e got teeth, yeah definitely. And Joie told CBS Evening News apparently that Wally had helped support him through depression.
[Clip]
JOIE-听听听听听听听听听听听听听听听听 I get lonely and stuff like that there. And he seems to sense that stuff, you know. He鈥檒l come up and give me a hug, and makes me feel loved.
[End of clip]
EMMA-听听听听听听听听听听听听 I mean, that鈥檚 fair enough. I am joking, but each to their own. If it works for him and Wally supports him then great.
NIKKI-听听听听听听听听听听听听听 I know.
EMMA-听听听听听听听听听听听听 That鈥檚 lovely. That鈥檚 really lovely.
NIKKI-听听听听听听听听听听听听听 Well, Ems, do you know, we have had an awful lot of feedback from our episode last week where you left me alone.
EMMA-听听听听听听听听听听听听 Hmm, you know what, I wasn鈥檛 even there, as you keep pointing out. I was on my holidays. But I did hear about it: it was a photography campaign which used disabled influencers on posters wearing t-shirts with slogans like Can鈥檛 Push This.
NIKKI-听听听听听听听听听听听听听 [Hums campaign tune] this is the government鈥檚 Ask, Don鈥檛 Assume campaign. It was a very unexpectedly diverse campaign because, I don鈥檛 know if you saw Em, Disability Rights UK initially tweeted it was something like: support the government鈥檚 ridiculous attempt to purple wash the murderous ableist policy. So, a very strong tweet there from DRUK, which they later deleted. And we had Dan White on to talk about that, and he kind of defended as to why someone may have decided to use that language.
EMMA-听听听听听听听听听听听听 Yeah.
NIKKI-听听听听听听听听听听听听听 It was passionate, people are struggling, disabled people are struggling, these were all his words.
EMMA-听听听听听听听听听听听听 Well, disabled people are passionate because they got in touch with us by email about this.
NIKKI-听听听听听听听听听听听听听 Including George.
EMMA-听听听听听听听听听听听听 From all sides of the debate.
NIKKI-听听听听听听听听听听听听听 Yeah.
EMMA-听听听听听听听听听听听听 Martin called the campaign totally inappropriate, in fact patronising and offensive.听
NIKKI-听听听听听听听听听听听听听 Yeah. And George got in touch, he said, 鈥楾he reaction could be summarised as don鈥檛 even ask, just leave us alone鈥�. But he wondered if it was really what people wanted to hear, suggesting it turns a positive act of helping into a minefield.
EMMA-听听听听听听听听听听听听 So, Amelia, who鈥檚 an autistic student, she felt that people had more of a problem with the campaign because it was by the government, rather than the actual meaning behind it. And she also felt bad for the disabled models involved, and she said that that they should have been praised rather than shut down, because being up there with those t-shirts on in social media it could have been quite exposing.
NIKKI-听听听听听听听听听听听听听 Yeah, and we did mention this last week, but the campaign was made by and in collaboration with other disabled people. Disabled people were in the actual video. But of course I can see how the message may have got taken in the way it was taken. But yeah, it鈥檚 just one those, a bit messy.
EMMA-听听听听听听听听听听听听 A bit messy but started lots of conversations.
NIKKI-听听听听听听听听听听听听听 We have got the Minister for Disabled People, Tom Pursglove, coming on next week so I鈥檓 going to ask him about him, Ems.
EMMA-听听听听听听听听听听听听 Right.
NIKKI-听听听听听听听听听听听听听 We love hearing from you so keep getting in contact. You can do that by email accessall@bbc.co.uk, or you can get hold of us on X, Twitter @麻豆社AccessAll.
EMMA-听听听听听听听听听听听听 Send us a voicemail because we absolutely love those.
NIKKI-听听听听听听听听听听听听听 We love it. Our number is 0330 123 9480.
听听听听听听听听听听听听听听听听听听听听听听听听听 Now, if you鈥檙e unfamiliar with the name Joseph Merrick you鈥檝e probably heard his nickname, the Elephant Man. Joseph was born in the 1860s. During childhood his body began to grow rapidly and abnormally, creating an overgrowth of skin and bone. He spent time in a freakshow 鈥� I hate that word 鈥� and he was considered a curiosity. Now, there have been many productions about his life, but for the first time the play, The Real & Imagined History of the Elephant Man, tells the story from Joseph鈥檚 perspective and is performed by a disabled and neurodivergent cast at Nottingham Playhouse. And I am so thrilled to say that we are joined by lead actor, Zac Ford-Williams, who plays Joseph. He鈥檚 just literally come off rehearsals, haven鈥檛 you?
ZAC-听听听听听听听听听听听听听听听听 Yeah, I鈥檓 still sweating [laughs].
NIKKI-听听听听听听听听听听听听听 He鈥檚 still literally sweating. But he鈥檚 here with us now and it鈥檚 just so lovely to meet you, Zac.
ZAC-听听听听听听听听听听听听听听听听 Thank you. It鈥檚 a pleasure, Nikki, it really is to be here.
NIKKI-听听听听听听听听听听听听听 This sounds like a hugely demanding role for you, Zac. I mean, how do you prepare for something? Because you鈥檝e got cerebral palsy, you must have to consider your energy sometimes?
ZAC-听听听听听听听听听听听听听听听听 Mainly in terms of economising movement, so making sure I save my energy for the things that really matter. And when I鈥檓 working it鈥檚 like never stand when you can sit, and never sit when you can lie down.
EMMA-听听听听听听听听听听听听 I love that.
NIKKI-听听听听听听听听听听听听听 This is smart, this is really smart. When it comes to playing these big roles like the one we鈥檙e going to come onto in a minute what is it like? I imagine you have to keep quite on top of your game fitness wise, eh?
ZAC-听听听听听听听听听听听听听听听听 Yes. What is good I suppose about the demands of a play like this is I don鈥檛 have to exercise out of it, because I do so much exercising within the play that it keeps me physically fit whether I like it or not. So, there鈥檚 that that comes with it.
NIKKI-听听听听听听听听听听听听听 I love it. And fresh from the debriefs, I don鈥檛 know whether you can see, but we are joined by director Stephen Bailey. Hello.
STEPHEN-听听听听听听 Amazing. Sorry for being a bit late.
NIKKI-听听听听听听听听听听听听听 Oh honestly, we were joking that Zac got away from a highly critical debrief, which I鈥檓 sure wasn鈥檛 the case.
STEPHEN-听听听听听听 Absolutely not, no. He鈥檚 brilliant. 听
NIKKI-听听听听听听听听听听听听听 Well, Zac, we were talking there, weren鈥檛 we, about the demands, the physical demands of the play. But let鈥檚 talk about the character that you鈥檙e playing, Joseph Merrick, in this play.
ZAC-听听听听听听听听听听听听听听听听 It鈥檚 so interesting because this play, I鈥檓 sure Stephen will tell you as well, is a sort of real and imagined history of his entire life from when he鈥檚 ten to the end of his life at 27. And the way he progresses through that as a person and his condition progresses through that is really interesting.
EMMA-听听听听听听听听听听听听 For people who don鈥檛 know who was he? What was he about?
ZAC-听听听听听听听听听听听听听听听听 To be honest, Stephen鈥檚 massively into the history and I think Stephen might be well versed in this.
STEPHEN-听听听听听听 Joseph Merrick was the son of a working class family in Leicester in the mid-19th century. And from early on his life, we don鈥檛 know why, it doesn鈥檛 necessarily matter, he had a condition which caused his skin and bone and tissue to overgrow. And over his very short life, he died when he was 27, this turned into his limbs and most maybe famously his head and face being very overgrown, giving him an unusual appearance. And he tried to work. He was unable to work due to his disability, so he was put in the workhouse. And he was only able to leave the workhouse by performing in human exhibitions and sideshows, which he did for a short while. And part of the reason we鈥檙e in Nottingham is because the very first place he exhibited is literally the road behind the building where we are now. And then maybe the most famously, because in the film it was the main element of it, when he was fired from the sideshow he was taken to a London hospital by a surgeon and both exhibited again, this time as a medical specimen, but also used as a curiosity for London society. But despite all that he passed away early in his life at 27, which I think is important to point out in terms of how we treat and view disabled bodies, he was then I鈥檓 afraid dissected. And his skeleton remains on display in I think it鈥檚 Queen Mary鈥檚 School of Dentistry and Medicine.
NIKKI-听听听听听听听听听听听听听 That鈥檚 it. Is that what鈥檚 important to you as well, Zac, when you鈥檙e playing this character, is that what you want audiences to get from it, from your performance?
ZAC-听听听听听听听听听听听听听听听听 Yes. We鈥檙e not doing prosthetics or any of that, which a lot of other adaptations have decided. Because I鈥檝e got CP, and I mask CP a lot, as something a lot of disabled people will be familiar with, I am not trying to put on a disability I don鈥檛 have, but I鈥檓 playing Joseph using levels of my own disability, my own cerebral palsy.
EMMA-听听听听听听听听听听听听 So, you tried to cover up your cerebral palsy, like lots of people do with their disability, subconsciously or whatever, but for this you鈥檙e not doing that as much?
ZAC-听听听听听听听听听听听听听听听听 Yes. And progressively as well, one of the interesting challenges as his condition progresses over the course of the play I am letting it out more and more, which is again a really interesting challenge as a way to show the way his condition is slowly progressing without crimping up.
EMMA-听听听听听听听听听听听听 So, without wearing any sort of mask or doing anything differently鈥�
ZAC-听听听听听听听听听听听听听听听听 No.
EMMA-听听听听听听听听听听听听 鈥o show your body looking different.
NIKKI-听听听听听听听听听听听听听 Is this what鈥檚 really important to you then, Stephen? Is this what you really want, this is a very different take, and you want the audience to get very different things from this story?
STEPHEN-听听听听听听 Yeah. I think a lot of the Elephant Man that exists, that鈥檚 the David Lynch, and there is an existing play that was at the National and has been in the West End and all of this. The performance is mostly about two things which I think are less important, they both gives huge importance to the doctor who gave me the charity of giving him somewhere to actually live. And a lot of the focus is on a non-disabled person, be that John Hurt, Bradley Cooper, David Bowie, oh how are they going to portray this. And whereas here it鈥檚 much more just the entire company are deaf, disabled and neurodivergent actors, and a large portion of the creative team are too, is just going well this actually is authenticity. All of this work, all this method stuff people talk about, Zac can just walk in the room and do that.
NIKKI-听听听听听听听听听听听听听 Guys, thank you so much for joining us, because I know you guys must be so hectic at the moment. Good luck with it all. It sounds brilliant, it really, really does. I do want to see it myself. Oh god, it says on the script I鈥檝e got to say break a leg.
ZAC-听听听听听听听听听听听听听听听听 Ooh.
EMMA-听听听听听听听听听听听听 Don鈥檛 break a leg Zac, whatever you do.
ZAC-听听听听听听听听听听听听听听听听 Yeah [laughs].
NIKKI-听听听听听听听听听听听听听 So, the Real & Imagined History of the Elephant Man gets underway at the Nottingham Playhouse; it鈥檚 also going to be on tour visiting Blackpool Grand Theatre and Coventry鈥檚 Belgrade Theatre. Am I right guys?
STEPHEN-听听听听听听 That is correct, yeah.
ZAC-听听听听听听听听听听听听听听听听 That is correct.
NIKKI-听听听听听听听听听听听听听 Have fun. And thank you so much for coming on.
EMMA-听听听听听听听听听听听听 Bye.
ZAC-听听听听听听听听听听听听听听听听 Lovely, thank you.
STEPHEN-听听听听听听 Our pleasure.
NIKKI-听听听听听听听听听听听听听 That was the Elephant Man, a bit of a dark period of disability history right there, eh? But get yourself along because it sounds really interesting and they鈥檙e doing it a different way. Go to the Nottingham Playhouse to see Zac. What a fella. I really like him, he鈥檚 really talented. And the rest of the cast of course. That鈥檚 it for this week though. We are back as usual next week. But you鈥檙e away again, aren鈥檛 you, Emma Tracey.
EMMA-听听听听听听听听听听听听 Yes.
NIKKI-听听听听听听听听听听听听听 You鈥檝e only just got back. Is it something I鈥檝e said?
EMMA-听听听听听听听听听听听听 I know.
NIKKI-听听听听听听听听听听听听听 What have I done?
EMMA-听听听听听听听听听听听听 Holiday number two. You鈥檝e done nothing, mate. It鈥檚 just that I didn鈥檛 take my holidays for months and months and my kids are on their half-term Scottish holidays, because they鈥檙e a bit earlier than the English ones, so we thought we鈥檇 take the opportunity and we鈥檙e off to Ireland.
NIKKI-听听听听听听听听听听听听听 Oh lovely. Have a lovely time, Ems.
EMMA-听听听听听听听听听听听听 I鈥檒l get to see my mammy as well.
NIKKI-听听听听听听听听听听听听听 I will miss you very much.
EMMA-听听听听听听听听听听听听 I鈥檒l miss you too. And looking forward to hearing what happens next week because there鈥檚 some exciting stuff planned. Now, you can get in contact in the usual ways. We鈥檙e on Elon Musk鈥檚 beloved X platform @麻豆社AccessAll. You can email accessall@bbc.co.uk. And do tell us where you are, because I鈥檓 actually always kind of fascinated to know where people are listening. For example, the guy who helps me to the train in the morning he鈥檚 listening in the office at Inverkeithing train station and he says he is, and I quote, heehawing and laughing at us.
NIKKI-听听听听听听听听听听听听听 Oh that鈥檚 nice.
EMMA-听听听听听听听听听听听听 Or with us I would hope [laughs].
NIKKI-听听听听听听听听听听听听听 I鈥檓 not sure what the geographic knowledge adds, but I鈥檒l go with it, Ems.
EMMA-听听听听听听听听听听听听 Well, you know, Inverkeithing, might as well put it on the map.
NIKKI-听听听听听听听听听听听听听 I like it, I like it. Okay, till next week everyone.
EMMA-听听听听听听听听听听听听 Goodbye.
[Trailer for The Today Podcast]
AMOL-听听听听听听听听听听听听 Hello, it鈥檚 Amol.
NICK-听听听听听听听听听听听听听听 And I鈥檓 Nick, and we鈥檙e launching The Today Podcast from Radio 4.
AMOL-听听听听听听听听听听听听 Come on then, what is it, Nick?
NICK-听听听听听听听听听听听听听听 Well, every week we鈥檙e going to take a big subject we want to spend more time on. Because, I don鈥檛 know about you, when I present the Today programme I鈥檓 always thinking of things I wish I鈥檇 asked, I wish I鈥檇 heard, and this is going to give us the time to do that: to get more analysis, more insight, sometimes more gossip.
AMOL-听听听听听听听听听听听听 Same goes for me. I鈥檓 looking forward to this. Episodes will drop every Thursday. It鈥檚 called The Today Podcast and you can listen now on 麻豆社 Sounds.
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Access All: Disability News and Mental Health
Weekly podcast about mental health, wellbeing and disabled people.