Paralympian James Brown: My disability needs were denied in prison
Paralympian climate protestor: I won compensation after my access needs were denied to me in prison.
Paralympian James Brown, who is partially sighted, has given his first broadcast interview to Access All since he won compensation from the government over his treatment in prison.
Brown reached an out of court settlement with the Ministry of Justice after he launched legal proceedings for being denied his access needs in jail.
He鈥檇 been given a custodial sentence for glueing himself to a plane as part of an Extinction Rebellion protest.
We also hear from Recoop, a charity which supports older prisoners, about the situation facing other disabled inmates in the UK.
And we hear from the writer Melanie Reid, on why she鈥檚 put an end to Spinal Column 鈥� her regular updates for the Times newspaper, which documented her trials and tribulations since she became a tetraplegic and a wheelchair user following a riding accident in 2010.
Presenter: Emma Tracey
Editor: Farhana Haider
Producers: Daniel Gordon, Alex Collins
Sound recording and mixing: Dave O鈥橬eill
Transcript
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10th December 2024
bbc.co.uk/accessall
Access All 鈥� episode 137
Presented by Emma Tracey
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EMMA-听听听听听听听听听听听听听听 Melanie Reid, you have just written the last instalment of the Spinal Column in the Times newspaper and you鈥檙e going to with me later in the episode for a big long chat but you鈥檙e also keeping me company at the start of the episode. Hello.听
MELANIE-听听听听听听听听听 Lovely to be with you.
EMMA-听听听听听听听听听听听听听听 We鈥檙e asking everybody who鈥檚 come on in the last few weeks, we鈥檙e asking all our celebrities, our well-known people for their disability moment of 2024. What鈥檚 yours?
MELANIE-听听听听听听听听听 On a really beautiful sunny day, out on my disability scooter zipping around with the wind in my hair and just thinking, this is wonderful, I鈥檓 still alive, I鈥檓 still here to enjoy this. I鈥檝e lost a lot of friends to cancer in the time I鈥檝e been disabled, and there鈥檚 something fantastic about still being alive and being able to enjoy nature.
EMMA-听听听听听听听听听听听听听听 Thank you for that, Melanie. And we want to hear more of your highlights, disability moments of 2024 because the year is drawing to a close; and we鈥檙e going to play some of them out on a special episode around Christmas time. So, do send them on to us 0330 123 9480 is the WhatsApp number. Or email them to accessall@bbc.co.uk. On with the show.
MUSIC-听听听听听听听听听听听听听 Theme music.
EMMA-听听听听听听听听听听听听听听 Hello, I鈥檓 Emma Tracey and this is Access All, the podcast talking about the disability stuff that other shows just don鈥檛. One woman who also never shies away from talking about tricky topics is The Times newspaper columnist Melanie Reid. She wrote her first Spinal Column two weeks after breaking her neck and back in a horse riding accident. And a few weeks ago she stopped; she wrote her very final one. And we will find out why later in the show.
听听听听听听听听听听听听听听听听听听听听听听听听听听 But first, according to government statistics, which were last recorded in 2012, 36% of prisoners in England and Wales are disabled. On this episode we鈥檙e going to take a deep dive into that reality because Paralympian James Brown who was jailed in 2019 for causing a public nuisance and spent 10 weeks in prison was recently awarded almost 10 thousand pounds in compensation from the ministry of justice because his access needs were not met. We鈥檒l also be hearing from the Recoop a charity which supports older prisoners. James Brown is a paralympic gold medallist, he鈥檚 a father of four, but he hit the headlines when he was arrested for gluing his hands to an airplane as part of an Extinction Rebellion protest in 2019. James is visually impaired, which I suppose for many people made the story all the more intriguing. To James鈥� surprise he was sentenced to 12 months in prison, and that was reduced to four months on appeal when James claimed that he was experiencing unique hardship inside due to his impairment. He was released after ten weeks, and James Brown is here with me to tell me his story. Hi James.
JAMES-听听听听听听听听听听听听听 Hi there, Emma.
EMMA-听听听听听听听听听听听听听听 Thank you for coming in to Access All. What was life like for you, James, before 2019 in the lead up to 10th October, the day that you went on that protest?
JAMES-听听听听听听听听听听听听听 Until sort of 2018 I鈥檇 been blissfully unaware of the climate crisis. My eyes were opened [laughingly] metaphorically and literally by my daughter who I met for a coffee one morning. She was in utter grief and I needed to know what was going on. I jumped into action and I said, 鈥榃ell, what do we do?鈥� and so I joined Extinction Rebellion. 2019 I was involved in a protest at City Airport in London where I, as you say, climbed on top of a plane and then glued my hand to it.
EMMA-听听听听听听听听听听听听听听 And when you were glued to the plane what happened next?
JAMES-听听听听听听听听听听听听听 I was there for just over an hour. The emergency services brought extra platforms alongside the plane so that they could work from there to bring me down safely.
EMMA-听听听听听听听听听听听听听听 And they brought you down safely?
JAMES-听听听听听听听听听听听听听 Yes.
EMMA-听听听听听听听听听听听听听听 And were you not thinking when you were up there of the people trying to go on their holidays, the staff, the problems in the airport that it was causing?
JAMES-听听听听听听听听听听听听听 Yes, of course. I mean, this is the big dilemma for those who take direct action is that disruption can occur and does occur.
EMMA-听听听听听听听听听听听听听听 When you were arrested what was that like? Had you ever been arrested before? What鈥檚 it like for a visually impaired person to be arrested?
JAMES-听听听听听听听听听听听听听 Yeah, I鈥檝e been arrested. The very first time was in Bristol. Something quite interesting happened in custody, when you are taken into custody you are told by the custody sergeant that you have three rights: one is to speak to a solicitor; one is to make a phone call; and the third is to read a copy of the PACE code of practice, which is like the police code of practice document. So, I asked for a copy of it and they gave me a print copy. I said, 鈥業 can鈥檛 read print. Do you have it in any other format?鈥� and they didn鈥檛. So, I actually asked that question a couple more times when I was in custody subsequently, and ultimately we took the issue to the Home Office. And as a result of that protest, [laughs] mini protest if you like, there are now copies of the code of practice in other formats.
EMMA-听听听听听听听听听听听听听听 So, the case went to trial, and you represented yourself, which fascinates me because that must have been tricky again in terms of accessibility etc?
JAMES-听听听听听听听听听听听听听 Yeah, it was very difficult. I was not in a good place at the time. One of the other things that really happened to me as a result of my discovery of the extent and the speed at which the crisis is heading towards us my mental health deteriorated very significantly.
EMMA-听听听听听听听听听听听听听听 So, you had climate anxiety?
JAMES-听听听听听听听听听听听听听 Yeah, exactly. It was pretty awful, I was crying most days, I just didn鈥檛 know what to do with myself. When it came to court again I think I wasn鈥檛 in the best place.
EMMA-听听听听听听听听听听听听听听 You were sentenced to 12 months in prison. Did you think for a moment you would go to prison?
JAMES-听听听听听听听听听听听听听 I knew it was an outside possibility. My lawyer had said that because this was a fairly high-profile case that there was a possibility that I could get a prison sentence. And also because it was at an airport he felt that that would make a difference as well. So, yes I knew it was possible, but I didn鈥檛 think it was likely.
EMMA-听听听听听听听听听听听听听听 And then the judge said when passing sentence that you had cynically used your disability and put your own life at risk to carry out that stunt. What is your response to that?
JAMES-听听听听听听听听听听听听听 I don鈥檛 really know what he meant by cynically using my disability. In terms of risking my own life I feel like a professional risk taker in a way anyway, you know, I鈥檝e been a paralympic athlete all my life. I鈥檝e cycled, I鈥檝e skied, I鈥檝e done all kinds of sports and taken all kinds of risks, so in terms of me being able to take care of my own safety I wasn鈥檛 concerned about that. But obviously from an outsider鈥檚 perspective I can see the point.
EMMA-听听听听听听听听听听听听听听 But what do you think he meant by cynically using your disability?
JAMES-听听听听听听听听听听听听听 Maybe he meant that I would be first onto the plane because I was using the assistance service.
EMMA-听听听听听听听听听听听听听听 And that would make it easier for you to climb up and put your hand on?
JAMES-听听听听听听听听听听听听听 Yeah.
EMMA-听听听听听听听听听听听听听听 And how do you feel about that, is that true?
JAMES-听听听听听听听听听听听听听 It probably is, but if one is going to take such an action that鈥檚 got to be the least risky way to do it.
EMMA-听听听听听听听听听听听听听听 And did you think maybe as a disabled person, as a visually impaired person you might have been treated differently in the justice system on the way through trial and everything, maybe more leniency?
JAMES-听听听听听听听听听听听听听 No, no more leniency, but certain adjustments were made. So, I was able to have somebody beside me in court; when I needed documents to be read out somebody was able to assist me with that.
EMMA-听听听听听听听听听听听听听听 Tell me about the first day, the day you were sentenced and what happened, and what it was like for you as a visually impaired person.
JAMES-听听听听听听听听听听听听听 Yeah, prison isn鈥檛 great for any person. The British prison system is in chaos, there鈥檚 no question about that. that affects everybody. And I guess the additional challenges that I faced as a visually impaired person made it harder.
EMMA-听听听听听听听听听听听听听听 In what way?
JAMES-听听听听听听听听听听听听听 The first thing that really became apparent was the lack of any kind of induction, any familiarisation. I did have a meeting with the head of equalities just to bring up some issues that I faced. So, for example I was receiving quite a lot of mail. My wife had posted my glasses into the prison as soon as I got there, and those glasses weren鈥檛 given to me until week eight or nine.
EMMA-听听听听听听听听听听听听听听 And what do those glasses do for you?
JAMES-听听听听听听听听听听听听听 They help me to read print. They have a very strong single bubble lens in one eye and so I can read print at about an inch away or two, a couple of centimetres away. So, I didn鈥檛 have my glasses.
EMMA-听听听听听听听听听听听听听听 And you didn鈥檛 obviously have a smartphone which visually impaired people would use a magnifier on or they would scan the mail. You use your smartphone for all sorts of things that people use their eyes for.
JAMES-听听听听听听听听听听听听听 Yes.
EMMA-听听听听听听听听听听听听听听 It鈥檚 not just for phone and reading and stuff; not that you would be expected to have one in prison, but you didn鈥檛 have any of those things.
JAMES-听听听听听听听听听听听听听 I think maybe I was one of the few that didn鈥檛 have a phone.
EMMA-听听听听听听听听听听听听听听 Oh [laughs].
JAMES-听听听听听听听听听听听听听 I discovered towards the end how rife phone ownership is in prison.
EMMA-听听听听听听听听听听听听听听 Really?
JAMES-听听听听听听听听听听听听听 Oh gosh, yes. The one thing that you could argue maybe that they did get right was that they put in place a personal evacuation plan.
EMMA-听听听听听听听听听听听听听听 An old PIP, we all need those everywhere we go.
JAMES-听听听听听听听听听听听听听 The problem with that was that when the officer came to tell me that they had produced this听听听听 to me I asked whether they could go through it with me so that I could understand what the escape routes might be in the event of a fire and so on. And he said, 鈥楴o, we don鈥檛 have time to do that鈥�. I said, 鈥榃ell, can you read me what鈥檚 on the document?鈥� he said, 鈥楴o, it鈥檚 all right because we have a copy鈥�. And then worse than that they put a big sign on my door, a big yellow sign with my full name on it and the fact that I was visually impaired, but the main thing was that it attracted quite a lot of undesirable attention to my door because people would see my name and then come over and open the little hatch and try to engage with me. There are lots of lovely people in prison, but there are also folk who are not quite so lovely and quite scary at times.
EMMA-听听听听听听听听听听听听听听 So, what kind of unwanted attention did you get, James?
JAMES-听听听听听听听听听听听听听 It was very, very uncomfortable. I just felt it was unwanted attention and I was scared.
EMMA-听听听听听听听听听听听听听听 Okay. And how did prisoners treat you generally?
JAMES-听听听听听听听听听听听听听 That鈥檚 quite interesting [laughs], generally better than the staff did.
EMMA-听听听听听听听听听听听听听听 Okay, let鈥檚 talk about the prisoners first. What way did they treat you? And did they treat you the same as their fellow prisoners? Differently?
JAMES-听听听听听听听听听听听听听 I just want to look at one other of the problems that I faced and then I can kind of tie that into how I was supported. So, the way that you access information in prison in Wandsworth and many others is through what鈥檚 called a kiosk. So, it鈥檚 like a touchscreen computer on the wall in the hallway. Obviously I didn鈥檛 have any access to that, and other prisoners tried to help me with it. Even when I had asked the equalities team for dedicated assistance to use the kiosk that wasn鈥檛 forthcoming, so other people鈥�
EMMA-听听听听听听听听听听听听听听 And what sorts of things is the kiosk needed for?
JAMES-听听听听听听听听听听听听听 To order food, to order your meals, soap, writing paper, pens, stamps, you know, anything that you would buy from the shop.
EMMA-听听听听听听听听听听听听听听 So, you didn鈥檛 have access to any of that unless a prisoner helped you?
JAMES-听听听听听听听听听听听听听 Exactly. And the prison officers actively prevented other prisoners from supporting me in that way, [laughs] which was ironic. The other thing was that I didn鈥檛 know what I didn鈥檛 know, so there鈥檚 a whole host of stuff on this kiosk, and I only learned this towards the end. So, in order to make a complaint about something the way you do that is to fill in a form on the kiosk. I didn鈥檛 know that. So, I wasn鈥檛 able to complain about the fact that my glasses hadn鈥檛 come. I wasn鈥檛 able to complain about the fact that I had been fairly badly treated by an officer who was taking me to a dental appointment and noticed me tripping, she wouldn鈥檛 guide me. She noticed me tripping over a very low gate outside in the dark, and when I asked her for assistance she just point blank refused. But it turned out she had a specific sort of issue with protestors, so.
EMMA-听听听听听听听听听听听听听听 Okay. And in terms of other officers how were you treated by them?
JAMES-听听听听听听听听听听听听听 Definitely no special treatment. There was one officer in particular who consistently prevented other prisoners from supporting me. So, if somebody came to my door, if I鈥檇 met somebody in the corridor when we were out in the social time and asked them for some assistance with the kiosk, the officer in charge wouldn鈥檛 let them provide that assistance.
EMMA-听听听听听听听听听听听听听听 And why?
JAMES-听听听听听听听听听听听听听 I鈥檓 not really sure. I think they have a regime, they want to implement it. They鈥檙e short-staffed, they find it very hard to recruit and retain staff, they鈥檙e always short-staffed. We experienced 23-hour day lockdowns, sometimes 48-hour lockdowns where we simply weren鈥檛 allowed out of our cells at all, and that was just staff shortages.
EMMA-听听听听听听听听听听听听听听 And were there some prison staff that were nice to you and did help you?
JAMES-听听听听听听听听听听听听听 There was a lovely Quaker lady who came as a prison visitor and she was able to get me audio CDs and a CD player from the library. One of the things I was really worried about was boredom.
EMMA-听听听听听听听听听听听听听听 Yeah.
JAMES-听听听听听听听听听听听听听 I don鈥檛 watch TV and there is a TV in the cell. Luckily my cellmate wasn鈥檛 a big TV watcher either. So, yes I was able to get a CD player and some CD audiobooks. Obviously they weren鈥檛 to my choice.
EMMA-听听听听听听听听听听听听听听 What did you end up reading?
JAMES-听听听听听听听听听听听听听 Oh god, the sort of stuff you would just never choose on your own. In fact that was quite a lot of sort of crime related stuff they had in the CD library.
EMMA-听听听听听听听听听听听听听听 Oh interesting. Like crime fiction?
JAMES-听听听听听听听听听听听听听 Yeah, crime fiction.
EMMA-听听听听听听听听听听听听听听 Or how to commit a crime [laughter].
JAMES-听听听听听听听听听听听听听 Yeah, how to get out of Wandsworth. There was one nurse as well who was particularly helpful. She was assessing me as I arrived at prison and she was minded to put me in what they call a medical cell because of my sight impairment.
EMMA-听听听听听听听听听听听听听听 What鈥檚 the difference between a medical cell and a normal?
JAMES-听听听听听听听听听听听听听 Well, I guess maybe, well it鈥檚 a single cell rather than a double cell. It鈥檚 closer to medical services. But she also then noticed that I was chatting to a chap that had come in at the same time as me. He was also an older white man, educated, middle class, and the two of us hit it off. She noticed that so she made representations and managed to get us into the same cell. That was very, very helpful because he, Steve, was able to read me my mail and provide other assistance as well. So, when it was laundry day he would go and get involved in the scramble for clean sheets so it meant I didn鈥檛 have to do that. So, in terms of assistance he was great.
EMMA-听听听听听听听听听听听听听听 You鈥檝e mentioned being a Paralympian a couple of times, you鈥檝e been a cyclist, you鈥檝e skied, you鈥檝e done other sports. How did that serve you in prison?
JAMES-听听听听听听听听听听听听听 On the rare occasion when we did get out into the exercise yard I was so frustrated being pent up in the cell I would go straight into a full exercise routine of push-ups and squats and step-ups and pull-ups and da, da, da. And for the other prisoners to see somebody who鈥檚 nearly 60 out there exercising in the way that nobody else was鈥�
EMMA-听听听听听听听听听听听听听听 Yeah, and somebody who鈥檚 disabled and someone who probably they might have thought was vulnerable.
JAMES-听听听听听听听听听听听听听 Yes, that鈥檚 right. I mean, I had my white stick with me all the time; I never left my cell without it. So, yes, when I was out in the yard it was very obvious to everybody that I was visually impaired.
EMMA-听听听听听听听听听听听听听听 And did that change perceptions do you think?
JAMES-听听听听听听听听听听听听听 I think it brought me quite a lot of kudos. I was able to do more pull-ups than the young lads, and they鈥檙e always competing amongst themselves, and then along comes this old blind guy with a white stick [laughter], you know.
EMMA-听听听听听听听听听听听听听听 Tell me about the role the white stick played?
JAMES-听听听听听听听听听听听听听 For me it was protection. I made that judgement in prison and I used it every single time I left the cell. My eyes don鈥檛 look straight, so I have been in a situation in the outside world occasionally where people have misconstrued the way that I鈥檝e been looking at them. And I didn鈥檛 want that happening in prison surrounded by potentially violent people. So, that was one of the reasons for having a stick. And on one occasion when I did bump into somebody again, doesn鈥檛 happen a lot but does occasionally, some guy did turn to swing at me and somebody prevented him, one of the other prisoners prevented him because they saw my stick and they said, 鈥楴o, no, don鈥檛 hit the blind man鈥�.
EMMA-听听听听听听听听听听听听听听 Okay. So, were you ever physically hit or assaulted or anything?
JAMES-听听听听听听听听听听听听听 No, I wasn鈥檛. There鈥檚 the stereotypical shower room scenario where people worry about being in the showers and stuff like that, but it was actually more of a common room, a social area. And if somebody would come out of their shower cubicle and saw me waiting they would give me a shout and say, 鈥楯ames, the second door on the left is open, ready for you鈥�.
EMMA-听听听听听听听听听听听听听听 That鈥檚 good [laughter]. So, when you were released after ten weeks you didn鈥檛 let go of the issues that had befallen you in prison around access and treatment. What happened?
JAMES-听听听听听听听听听听听听听 I spoke to a human rights lawyer and said look, the prison did not serve me well. In addition to all the other challenges that everybody faces in prison I was denied my glasses for almost the entire time I was there. My cellmate wasn鈥檛 and he was fully sighted. I was denied any work opportunities and was simply told that those wouldn鈥檛 be available to me because I was visually impaired. I had no access to information, no sports, the kiosk, no proper induction, so it really was a big struggle. And they definitely failed in a number of areas to support me as a disabled person. So, we took a case of discrimination against the Ministry of Justice to the court and recently settled out of court on that matter.
EMMA-听听听听听听听听听听听听听听 So, you got some money from them?
JAMES-听听听听听听听听听听听听听 Yes, I did.
EMMA-听听听听听听听听听听听听听听 And do you feel vindicated? Do you feel like it鈥檚 been resolved?
JAMES-听听听听听听听听听听听听听 Yeah, it鈥檚 some compensation. I mean, I think, just like the issue with the PACE code of practice document I would like to see something more done. Like I said on that particular issue it was taken to the Home Office and changes have been made. So, I don鈥檛 know whether my treatment in prison and the compensation that they鈥檝e had to pay me will make things any better for anybody else. I doubt it I鈥檓 afraid.
EMMA-听听听听听听听听听听听听听听 How much did you ask for and how much did you receive?
JAMES-听听听听听听听听听听听听听 We asked initially for 20,000, then we reduced it to 12,000 and settled on 9,500.
EMMA-听听听听听听听听听听听听听听 And are you going to pursue the rights of disabled prisoners any further or is that something you need to let go for yourself just now?
JAMES-听听听听听听听听听听听听听 Well, I鈥檓 trying to build up my business again and get my life back together. The mental health challenges that I faced as a result of the climate crisis and prison take time to work through. I鈥檝e had a lot of therapy, I am starting to feel better. So, yeah, it鈥檚 just really a case of trying to put my life back together post-prison, and then I鈥檒l decide what to do after that.
EMMA-听听听听听听听听听听听听听听 Okay. I鈥檓 going to read a statement from the Ministry of Justice. A prison service spokesperson said, 鈥榃e apologise to Mr Brown and this matter has now been resolved. Offenders in prison are entitled to request reasonable adjustments, and we encourage all instances of discrimination to be reported.鈥� What鈥檚 your response to that, James?
JAMES-听听听听听听听听听听听听听 Yeah, it鈥檚 really interesting, isn鈥檛 it? I mean, in terms of reasonable adjustments one would have thought that the first thing they could have done would have been to give me my glasses. I remember the equalities team came to see me in my cell, I brought this up with her, and this was about week 8, so towards the end of my time there, and she actually turned around and said to me, 鈥榃ell, I don鈥檛 understand why somebody with as little sight as you鈥檝e got would need glasses鈥�.
EMMA-听听听听听听听听听听听听听听 Okay, so there was a lack of awareness and understanding?
JAMES-听听听听听听听听听听听听听 Yeah, within the equalities team.
EMMA-听听听听听听听听听听听听听听 In terms of your activism are you going to pick that up again? Or again, are you just putting yourself together just now?
JAMES-听听听听听听听听听听听听听 Yeah, I鈥檓 getting my life back together. Like I say, I run a very important business that provides services for other disabled people, and I鈥檓 building that back up again. In terms of activism, I鈥檓 very interested in other aspects. Activism doesn鈥檛 just need to mean being out of the streets and taking direct action; there鈥檚 a lot of stuff that goes on in the background, so I鈥檓 looking at some of those other options at the moment.
EMMA-听听听听听听听听听听听听听听 James Brown, thank you for speaking to me on Access All.
JAMES-听听听听听听听听听听听听听 Thank you, it鈥檚 been a pleasure.
MUSIC-
EMMA-听听听听听听听听听听听听听听 Joining me now is Paul Grainge from the charity Recoop, who support men and women like James who are over 50 and who are in prison. Many of them are serving long sentences inside for murder, violent robbery and other crimes. A significant number of those prisoners are disabled, which can be challenging in many ways. Hi Paul, you鈥檙e very welcome.
PAUL-听听听听听听听听听听听听听听听 Good morning. Great to be here and to be able to talk about this hidden and marginalised group.
EMMA-听听听听听听听听听听听听听听 It鈥檚 great to be able to chat about it with you as well. What are the biggest issues facing disabled people in prison in the UK, Paul?
PAUL-听听听听听听听听听听听听听听听 I think first and foremost prisons are not geared up to support people with disabilities; 18%, nearly one in five, are over 50 and are presenting with lots of different ailments. There was some recent research that came out of the MoJ that suggested that 90% of prisoners over 50 have at least one moderate or severe health condition, and over 50% have three or more. So, that makes it really difficult for staff to be able to provide the regime adaptations that are needed just to support someone with a disability in a prison environment.
EMMA-听听听听听听听听听听听听听听 And what sort of stories have you heard from the people you support about the hardship they鈥檝e faced as a disabled or ill person in prison?
PAUL-听听听听听听听听听听听听听听听 When the Care Act came in in 2014 that set the responsibility to the local authority to come in and provide that care for those that needed Care Act assessments and care packages. Although what I would say is that that comes with own difficulties, trying to get a domiciliary care provider to come in, they have to be vetted, they have to be screened, they鈥檙e only in there long enough to help someone get dressed, but it might be that someone who鈥檚 neurodivergent that needs perhaps someone just to sit with them, to listen, there isn鈥檛 that time and that capacity to be able to do that. Not all local authorities are working in all the prisons providing this type of support. And it takes a long time to get some of those assessments done. So, if someone comes in there isn鈥檛 a set 28 days for someone to get assessed; someone could deteriorate really quite quickly.
EMMA-听听听听听听听听听听听听听听 And tell me about prisoners who are wheelchair users. Are prisons set up for wheelchair users?
PAUL-听听听听听听听听听听听听听听听 The old Victorian estate certainly isn鈥檛, and you can鈥檛 get stairlifts or lifts added in many because they鈥檙e just not geared up for it. So, that is an acute problem that the Ministry of Justice are aware of. I know there is an estate strategy, but if there aren鈥檛 ramps it鈥檚 not easy to be able to move someone around. Some departments, so it might be that the education department or a library is up a set of stairs, so if you鈥檙e in a wheelchair you can鈥檛 go there, so you might be stuck on the wings and the landings where you live and you鈥檙e not able to access other parts of the prison to be able to get that cognitive stimulation or to do a course that you need to, or to be inclusive and do some work with your peers and feel that actually you鈥檙e being able to do something.
EMMA-听听听听听听听听听听听听听听 And what about inside a cell? So, say if someone uses a mobility scooter or a chair in the corridors, can they get that inside their cell? How accessible are cells?
PAUL-听听听听听听听听听听听听听听听 Certainly some of the old Victorian cells, certainly for somewhere like Dartmoor you can鈥檛 get a mobility scooter or wheelchair in through the doors. So, if someone is there that is particularly difficult, they will need some assistance getting in and out of their cells and moving around.
EMMA-听听听听听听听听听听听听听听 Are there issues around being an older woman in prison specifically who is ill or disabled?
PAUL-听听听听听听听听听听听听听听听 We鈥檙e just about to start our menopause support group in some female prisons in the southeast. But some of the ailments are those that perhaps are the menopause, and again the side effects of medication. I鈥檓 just thinking of sweats, trying to get your bedding washed and washed yourselves when you actually need it rather than when a time is allocated in the prison regime is sometimes problematic, and it鈥檚 not good for self-esteem if someone has also perhaps got incontinence problems. So, there鈥檚 lots of different aggravators for someone that might be disabled, whether you鈥檙e male or female.
EMMA-听听听听听听听听听听听听听听 There are fewer women in prison than there are men, does that mean that a lot of different types of women are in the same spaces more than happens with men? And if so is the chaos of that quite tricky if maybe you鈥檝e got mental health struggles or are neurodivergent etc?
PAUL-听听听听听听听听听听听听听听听 There are some big concerns in the female estate. Because there are so few prisons different category female prisoners in one prison, so you鈥檝e got everything from high risk to someone who is low risk that it鈥檚 difficult to get that balance right of segregation. And the self-harm rates in the female estate are increasing. They are a real big concern. There鈥檚 a lot of work that needs to be done to address the emotional wellbeing and mental health of females in prison.
EMMA-听听听听听听听听听听听听听听 James Brown is on this episode of the podcast, and he鈥檚 blind, he鈥檚 over 50, and he went to prison for ten weeks and he talked quite a lot about how his peers in prison supported and helped him. How important and how involved are fellow prisoners with helping and supporting disabled prisoners?
PAUL-听听听听听听听听听听听听听听听 I鈥檓 so pleased you asked me that because I think the role of the voluntary sector and the role of peer support models is really, really important. They understand the environment, they live and breathe the same air, they have the same experience. That trust that can be built and that empathic ability that they have to support someone where there isn鈥檛 the operational stretch to be able to do that. So, the domiciliary care that will come in and perhaps help someone get dressed that鈥檚 disabled, they鈥檙e only there for a matter of minutes. That peer support that can sit there with someone, that can go and advocate for them, that can go to a healthcare appointment with them and describe how someone might be deconditioning or self-isolating, and the risk of loneliness that might be coming in, so that they could actually put in that wraparound support, is really key.
EMMA-听听听听听听听听听听听听听听 Yes, so interesting the role of fellow prisoners in supporting disabled prisoners. Thank you for telling us about that.
PAUL-听听听听听听听听听听听听听听听 You鈥檙e welcome. And thank you for being able to shine a light on some of these things and some of the good work that鈥檚 going on.
EMMA-听听听听听听听听听听听听听听 Paul Grainge from Recoop charity, thank you for joining me on Access All.
MUSIC-
EMMA-听听听听听听听听听听听听听听 Writer and journalist Melanie Reid is one of The Times newspaper鈥檚 best known contributors. For 14 years she has penned Spinal Column, all about her life as a tetraplegic and a wheelchair user, after falling from a horse in 2010. But a few weeks ago Melanie wrote her very final instalment. Now, she was a very, very successful reporter in Scottish affairs before her accident, but Spinal Column brought her a new audience. And she was honoured with an MBE for services to journalism and disability. Melanie, it鈥檚 an end of an era.
MELANIE-听听听听听听听听听 It鈥檚 been a big period in my life and it鈥檚 meant a lot to me. It鈥檚 been a vital lifeline my column since I had my accident. But it was time. I felt I should go out on a high. My priority now is to look after my husband and things like that.
EMMA-听听听听听听听听听听听听听听 That鈥檚 really interesting you talk about looking after your husband and that being one of the reasons to finish this column that has been so regular and so successful and so interesting to people looking in on it. Because up to 25% of unpaid carers in the UK are actually disabled, and I don鈥檛 think most people know that. And I just wonder what form that will take of looking after Dave, your husband, and what you鈥檒l be doing?
MELANIE-听听听听听听听听听 Dave is a little bit older than me and he鈥檚 run into rocky times. The big thing about disability that able-bodied people don鈥檛 realise is it鈥檚 really hard physical work looking after yourself. Everything takes not just twice as long, everything takes four times as long sometimes. There鈥檚 this daily grind of looking after your bodily functions and just moving your body around in an environment which isn鈥檛 built for you. I just didn鈥檛 have enough time or bandwidth left to be able to do work, look after myself and care for someone I love dearly who made huge sacrifices for me after my accident and cared for me. So, I decided to go with grace. Leave them wanting more, isn鈥檛 that the old showbiz thing? So, I decided to go out on a high rather than hang around and wait to be paid off and sacked.
EMMA-听听听听听听听听听听听听听听 I don鈥檛 know about sacked now, Melanie. It鈥檚 really interesting because I鈥檝e heard you talk about that you鈥檙e stopping the column so that you can do this for yourself and for Dave, and you鈥檙e not going to continue to write about that process of the two of you going through slightly similar things maybe in terms of care etc. When actually when you had the accident in 2010 within two weeks you were writing about in really, really raw terms. I mean, you said in your first column 鈥業n the space of 15 minutes I鈥檝e gone from someone whom I considered to be a fairly high-achieving mistress of her universe, to what looks like a tetraplegic鈥�. Why did you want to share that level of detail straightaway and then continue to share it with your audience?
MELANIE-听听听听听听听听听 Journalists are born with a desire to communicate. They recognise a good story. And in this very dark, dark way as soon as this happened to me I realised wow, this is a story. Very few people, fortunately, get to go to this dark place where I鈥檓 in and experience this absolute loss, divorce, bereavement from their bodies, and how extraordinary it is, how weird it is. I wanted to communicate that. At the same time it was an emotional life saver; it was a way of expressing bewilderment, grief, it was a way of processing, trying to understand this absolutely traumatic thing that had happened to me. It was pretty visceral. And The Times was amazing, they let me write in very raw detail about some of the indignities that every paralysed person goes through.
EMMA-听听听听听听听听听听听听听听 On Access All we鈥檙e a disability and mental health podcast so we talk about the nitty-gritty all the time and the minutiae, we call it, of being disabled and being a disabled person. And the other side of it that you鈥檝e talked a lot about are the tricky emotions, and emotions that disabled people and non-disabled people would find sometimes hard to read I think. And one of those from a very early column was jealousy towards non-disabled people or people who hadn鈥檛 got paralysis. What were you trying to convey by sharing these sorts of emotions and, you know, difficult things to say out loud? Maybe not difficult for you, but difficult to hear sometimes.
MELANIE-听听听听听听听听听 You end up expressing stuff that a lot of people don鈥檛 express. That was part of the emotional journey. I think here we should also make a distinction between acquired disability and disabilities which you are born with or you acquire in early life, because I think the two things are very different. You grow up very differently, you learn to appreciate what you have and you haven鈥檛 got. But when you鈥檝e gone through life and you reach middle age and you鈥檙e fit and healthy and complacent and a bit arrogant about your body and something dreadful happens, you feel this immense sense of loss and being cheated and of, who am I now, I鈥檓 not the person who can go to a gym and run 10ks and be very sort of quietly arrogant about how tall and strong I was. You鈥檙e just a lump, you know, you鈥檝e lost everything: you鈥檝e lost your femininity, you鈥檝e lost your allure, you鈥檝e lost the ability to wear nice clothes or look at yourself in the mirror and be a little bit proud of yourself.
EMMA-听听听听听听听听听听听听听听 And do you still feel like that, Melanie?
MELANIE-听听听听听听听听听 Oh god, yes.
EMMA-听听听听听听听听听听听听听听 That鈥檚 hard for maybe someone who鈥檚 had a similar level of injury to you and has maybe taken a different approach and has a different mindset around that to read. Do you have connections with other people in your situation? And do you have an affinity with people in the same position as you?
MELANIE-听听听听听听听听听 Some people are paralysed and they manage to cope with it amazingly and they get over it and they rebuild their lives. And I鈥檝e just been very raw about it. It is a kind of post-traumatic stress disorder I think; I think I probably suffer some form of that, and a lot of that is that loss of identity. It鈥檚 very primal stuff.
EMMA-听听听听听听听听听听听听听听 And have you created a new identity for yourself? What is your identity now 14 years on?
MELANIE-听听听听听听听听听 The me that I think of is not me in a wheelchair, Mel. But I get on with it.
EMMA-听听听听听听听听听听听听听听 So, you still see yourself as before in your head?
MELANIE-听听听听听听听听听 Yeah. That鈥檚 the thing about acquired disability: there鈥檚 the people you knew from before and the people you meet afterwards. And now when I meet people who I feel I wish I had the same status that I used to have in terms of height and ability. And that鈥檚 where I want to tap my breastbone and say, [voice breaking] the person in the wheelchair that you see that鈥檚 not the real me; the real me is鈥crying].
EMMA-听听听听听听听听听听听听听听 It鈥檚 obviously very painful.
MELANIE-听听听听听听听听听 Yeah. The real me is probably off somewhere mucking out a horse or, you know, cutting down brambles or pulling out weeds or, I don鈥檛 know, the real me was off doing something roughty-tufty. Forgive me for getting upset. But you know it鈥檚鈥� especially when the person that used to care for you is someone that you need to care for. That鈥檚 been another whammy. I鈥檓 going to have a sip of coffee and that鈥檒l make me get a bit of backbone.
EMMA-听听听听听听听听听听听听听听 Well, while you鈥檙e having your sip of coffee, let me, it鈥檚鈥� Absolutely do not apologise for getting upset. It makes me feel sad because I feel like you鈥檙e as fabulous as you were before, and that you鈥檝e been honoured with an MBE for services to journalism and to disabled people. But you鈥檝e also, [laughs] from my perspective as a disabled journalist and a disability-focused journalist for 20 years, you鈥檝e often said the other thing: so many disabled people with loud voices will give one opinion and you will give the other one or a different one or a differently-nuanced one. And while I鈥檝e often found that difficult to read, I鈥檝e really, really, really respected that. And I think your work you make me laugh and you鈥檙e an awesome writer, I don鈥檛 always agree with what you鈥檙e saying. But do you feel like you鈥檙e a bit of a disability campaigner in some way? Are you proud of yourself? What did you feel about the MBE?
MELANIE-听听听听听听听听听 Well, I鈥檝e raised awareness of spinal injury. I think I moved the dial on that a bit. I think that at the time my accident happened, which is just short of 15 years, disability wasn鈥檛 talked about nearly as much. It wasn鈥檛 on the agenda, there wasn鈥檛 the kind of awareness and kindness that there is now, the space and respect given to disability that there is now. Okay, it鈥檚 not perfect, but 15 years ago there wasn鈥檛 anything like that.
EMMA- 听听听听听听听听听听听听听听听听听听听听 Tell me, do you really think that disability is mainstream now?
MELANIE-听听听听听听听听听 When I started writing about grotty stuff and the limited life that you lead, when I started writing about that in the mainstream media I think it was a first. And there was this large, large number, this many, many thousands of people who live life in the shadows, who are a little bit invisible, who felt that here鈥檚 somebody who鈥檚 seeing our life suddenly the way we see it.
EMMA-听听听听听听听听听听听听听听 Times readers in your position who maybe weren鈥檛 reflected in the paper before?
MELANIE-听听听听听听听听听 Yes.
EMMA-听听听听听听听听听听听听听听 Well, Spinal Column has finished after 14 years, so maybe there is a space opening up for a disabled writer to write more about their lives.
MELANIE-听听听听听听听听听 Yes.
EMMA-听听听听听听听听听听听听听听 Melanie Reid, thank you for joining me on Access All.
MELANIE-听听听听听听听听听 It鈥檚 been lovely to join you, Emma.
EMMA-听听听听听听听听听听听听听听 That is it for this episode of Access All. Thank you so much to my guests, and thanks to you for listening. I really love hearing from you. As you know, I absolutely adore a WhatsApp voice message so do keep sending those to me. Pop the word Access at the beginning which makes them easier to find, and send them to the number 0330 123 9480. I love an email to, accessall@bbc.co.uk is the email address. And you can find us on our social media X and Instagram @麻豆社AccessAll. Please subscribe to us, if you haven鈥檛 already, and you鈥檒l get us onto your device every week without doing another thing. Just go to 麻豆社 Sounds and hit that big subscribe button. I would really appreciate that. Thanks for listening. Bye.听
[Trailer for Newscast]
CHRIS-听听听听听听听听听听听听听听 You know when you鈥檙e worried about something, but then you talk to your friend who knows more about the subject than you do, and straightaway you start to feel better? That鈥檚 what we try and do every day on Newscast.
MALE-听听听听听听听听听听听听听听听 Now, they鈥檙e saying that that would be simple to do, it would give everyone certainty.
CHRIS-听听听听听听听听听听听听听听 We talk to people who are in the news:
FEMALE-听听听听听听听听听听 You were chasing me round with a plate of cheese.
CHRIS-听听听听听听听听听听听听听听 We talk to people who know what鈥檚 going on in the news:
MALE-听听听听听听听听听听听听听听听 At least I didn鈥檛 get up and slap anybody.
CHRIS-听听听听听听听听听听听听听听 We talk to people who understand what the news means:
MALE-听听听听听听听听听听听听听听听 I think that he鈥檚 decided he鈥檚 going to listen, and then he might just intervene.
CHRIS-听听听听听听听听听听听听听听 And we talk to the best 麻豆社 journalists, asking the most important questions:
CHRIS-听听听听听听听听听听听听听听 What鈥檚 wrong with chinos? You don鈥檛 want them, people to start wearing chinos?
FEMALE-听听听听听听听听听听 Don鈥檛 start me, Chris.
CHRIS-听听听听听听听听听听听听听听 That鈥檚 Newscast from 麻豆社 News, the podcast that knows a lot of people who know a lot about the news.
FEMALE-听听听听听听听听听听 And I was like, go on Kate, put some more welly into it!
CHRIS-听听听听听听听听听听听听听听 Listen to Newscast every weekday on 麻豆社 Sounds.
CHRIS-听听听听听听听听听听听听听听 I鈥檓 glad I asked that.
FEMALE-听听听听听听听听听听 I鈥檓 very glad that you asked that!
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Access All: Disability News and Mental Health
Weekly podcast about mental health, wellbeing and disabled people.