βI lost my benefits at 16 for saying I could cookβ
Thousands of teen claimants lose benefits at 16, ΒιΆΉΙη data find.
ΒιΆΉΙη research has revealed that nearly a third of child claimants of Disability Living Allowance (DLA) have been rejected for adult benefits when they turn 16.
ΒιΆΉΙη Data Unit reporter Joanna Morris has been investigating to find out why this is happening, and shares that many rejections come because the forms are addressed to the teenagers who try to complete the paperwork themselves.
That includes Holly Crouch. Holly, who has epilepsy, tells Access All she was turned down for Personal Independence Payment at 16 because she had written on her form that she could cook - even though the risk of seizures meant she could never use the cooker without supervision.
Also on the programme - Jonny Heaver, fresh from being fired as a contestant on The Apprentice, gives an exit interview and talks about living with a facial difference.
PRESENTER: Emma Tracey
PRODUCERS: Daniel Gordon, Alex Collins
EDITORS: Beth Rose, Ben Mundy
SOUND RECORDING AND MIX: Dave OβNeill
Featured
-
.
Transcript
Μύ
11th March 2025
bbc.co.uk/accessall
Access All β episode 150
Presented by Emma Tracey
Μύ
Μύ
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Do you want some toast?
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Who are you talking to?
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Fletch, my disability epilepsy awareness dog.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And did you get Fletch as a pup and get him trained yourself?
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, we got Fletch as a puppy. He trained himself originally, and then we spoke to quite a few people, they came and had a little see of him. Heβs quite switched on as a spaniel, and heβs now registered properly, which is really cool.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Oh. Has he a little jacket?
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ He does, yeah.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Oh nice.
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Heβs got the little blue one that says Epilepsy Seizure Alert Dog.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ How does Fletch notify other people, he goes and annoys them doesnβt he, Holly?
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ He goes and barks in their faces, heβll fuss around their legs. Heβs a very licky dog when heβs agitated and when somethingβs wrong, and then heβll get more and more intense and start barking in peopleβs faces to get them to realise something is actually wrong.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And whatβs his success rate?
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Heβs only ever missed one seizure that I had, and itβs just because I was too far away we believe; I was upstairs and he was in the sitting room. He used to come to college with me and it was quite impressive, the teachers always knew when I was going to have one because heβd just start rampaging around the room, jumping up at them, barking consistently. But he also, whilst Iβm having a seizure, heβll lay on me, a bit like a weighted blanket, legs fully stretched. It makes you feel more comfortable when you come round, youβre more cooperative, because post-seizure you can be not cooperative at all because youβre postictal. Itβs where your electrodes are then rebalancing in your brain so you donβt actually know whatβs going on. And having that comfort there is quite nice. When you breathe next to someone your breathing goes in synch, and itβs the same with animals so heβll breathe in synch.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Ah, like spooning someone or whatever. Ah cute.
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ What signs is Fletch picking up on that youβre going to have a seizure?
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ What they actually pick up on is a significant increase of heart rate and your blood pressure, and then apparently very close to the time of when youβre going to drop you release a pheromone that apparently they can sense, which is incredible to me.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Amazing. And when he tells your teachers or your parents what can they do to support you?
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Itβs all about making you safe. You can never stop a seizure from happening but you can put in precautions. So, clearing a safe space; if they can get me down on the floor before I just collapse thatβs always a pro; making sure they have my rescue medications; making sure my parents are informed; and monitoring how long it is so we know when to call 999.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Oh wow. Itβs a pity he canβt use the phone himself, isnβt it, so if your parents were out for dinner or something he could, like, let them know?
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ [Laughs] heβs not got them on speed dial.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Get on the dog and bone, Fletch.
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ [Laughs] yeah.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Weβre going to be talking to you a little bit later, Holly, about disability benefits, so something completely different.
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ On with the show.
MUSIC-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Theme music.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Hello, Iβm Emma Tracey and this is Access All, the podcast that prides itself on sniffing out the best there is in guests and news from the world of disability and mental health. I think you lot have really good noses as well, so if you think thereβs something that youβve sniffed out that you think we should be getting on top of then please get in touch. You can email accessall@bbc.co.uk. You can find us on social media @ΒιΆΉΙηAccessAll on Instagram and X. And you can get on the WhatsApp, send us a voice message or a text message to 0330 123 9480. Listen, in a little while I will be talking to Jonny Heaver who was fired recently from Lord Sugarβs boardroom on the ΒιΆΉΙη reality TV show The Apprentice. He has a tutoring company, he has a facial difference, and weβll be talking about all of that in a little while.
ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ We know that the government is preparing to set out cuts to the benefits bill in the coming weeks, including payments made to disabled people. And we understand how much that will be worrying a lot of you, so as soon as there is an official announcement weβll be here to tell you what the impact will be on you. But first, ΒιΆΉΙη research has revealed that nearly a third of under-16s who receive Disability Living Allowance have had their applications rejected when theyβve reached 16 and need to move on to adult benefits, so Personal Independence Payments. Child Disability Living Allowance is paid to help with the extra cost of being disabled, of which we know there are many and varied. Our reporter, Joanna Morris, works in the ΒιΆΉΙηβs data unit, and she is in charge of the research in question and sheβs with me now. Hi Joanna.
JOANNA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Hi, nice to meet you.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Nice to meet you too. As is Holly Crouch. Now, Holly was one of the people that Joanna spoke to and interviewed for her research. Hi, Holly.
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Hello.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Stick with me, Holly. Iβm going to start with Joanna here. Joanna, what is Disability Living Allowance?
JOANNA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, when it comes to children DLA is designed to help with the extra cost of bringing up a disabled child. It can be claimed for children who have got mobility difficulties, those that might need a bit more care than non-disabled children do. Last year nearly 800,000 under-17s were receiving it, and itβs based on the support the child needs rather than their condition or their disability.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Okay. And then what happens to these teenagers when they hit 16?
JOANNA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Under the current rules when a child gets to 16 they have to apply for adult disability benefit. Theyβre invited to apply for this ahead of their entitlement to DLA ending, and they do continue to get the DLA until a decision is made, but thereβs no guarantee that theyβre going to receive PIP. This is not an automatic transition to adult benefits; they have to go through the same application process as anyone else would. And if they donβt receive it and their carers will lose eligibility for other forms of support that PIP can open the doors to, such as Carerβs Allowance or even Motability cars, transport to school or college potentially. And disabled young people and their families that weβve spoken to tell us that that support can disappear really quickly and the impact of losing it can be enormous.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Joanna, youβve been crunching the numbers around this, what have you discovered?
JOANNA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Through looking at DWP data that 29% of initial child DLA to PIP claims have been rejected since PIP was introduced in 2013. Now, in real people terms thatβs more than 124,000 young people that have had claims rejected since then.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Why do you reckon that 29% of children who were getting Disability Living Allowance and are told they need to move on to Personal Independence Payments, why are they being rejected in the first instance?
JOANNA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, the data weβve got from the DWP breaks down some of the reasons in a very general way. So, it shows us that some claimants didnβt send the forms back on time; others didnβt show up for their assessments when invited. But the vast majority of the rejected claims failed the points-based PIP assessment. The assessments are based around a series of questions around a claimantβs mobility and their ability to carry out day-to-day tasks. But three quarters of those who were assessed and had their claims ultimately rejected didnβt score enough points to qualify for the benefit.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And you found that quite a few of these 16 year-old teenagers with all sorts of different disabilities, including learning disabilities, autistic kids, lots of different impairments, were actually filling out the form themselves. What has that meant? Whatβs the implication of that?
JOANNA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ There are a lot of people out there who are filling the forms in themselves. Parents can apply to be their appointees and to act for them during the process, but those who feel able to can and do represent themselves. But that can bring issues with it I suppose. Experts have told us that the young age of this transition, coupled in some cases with learning disabilities for example, can sometimes mean that an applicant doesnβt have the best understanding of the kind of nuanced answers that are required to score points in the PIP assessment process. Weβve heard several examples of young people going through this process, and among those weβve heard about who have had their claims rejected, for example thereβs a young person saying that he could prepare meals for himself, but the assessors werenβt aware of the fact that heβd blown up several microwaves in the course of a year.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Letβs bring in Holly Crouch now. Joanna interviewed you for her research.
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yes.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Why did you get DLA in the first place?
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, I have epilepsy. It was really impacting my life and the way I could do things, but it wasnβt just impacting mine, it was impacting my parentsβ. It meant that I wasnβt able to do anything independently, even down if I wanted to go to the shops or just to town with my friends it meant that they had to be there really, taking me to school. So, it impacted the fact that the independence was completely lost, which made my parents have an extra cost that you donβt necessarily expect with a teenager. They donβt expect to be taking them everywhere and having to pay for the petrol to get everywhere. It just disrupted their lives as well as mine.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Itβs been five years since you turned 16, but what happened when you got to 16 and you needed to change from Disability Living Allowance to Personal Independence Payments?
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Itβs a very complicated system probably is the first thing Iβd say. Itβs not an easy process to do, to the point that I didnβt do any of it, it was my parents. And originally, from what I know, my claim got rejected because I didnβt meet the points for PIP. And I think the main reason for this is epilepsy is such a fluctuating condition that you answer some of the questions, a bit like what was said before, I can cook, yes Iβm very able to cook, but because epilepsy is so unpredictable I put yes, but realistically itβs one of those things that I can cook but if Iβm using boiling water youβre subconsciously very, very careful. At any point I could have a seizure and then that means major potential burns and stuff. So, theyβre very direct questions that you get asked; thereβs no room for if, buts and maybes. And I think thatβs something that needs to be changed because the form doesnβt necessarily allow for all of the different conditions.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And itβs hard, isnβt it, especially when youβre 16 to talk about in, say an assessment situation, the things you canβt do when youβre trying to find your place in the world and trying to work out what you can do and trying to do more than you should do in some ways, some points?
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah, 100%. But I found for me anyway you sort of hide how bad things are because you put on a smile and you want to make everybodyβs life as easy as possible. And also everybody around you, all your peers are growing up to be able to do things that you canβt, and you donβt necessarily want to admit that actually I canβt go to town on my own or I canβt get from A to B like you can. And itβs hard, because if you donβt have PIP or you donβt have the governmentβs almost faith you canβt get the things youβre entitled to; youβre not longer allowed to get the disability bus pass and the disabled personβs train pass, so it adds those extra costs that you donβt necessarily even think about. It builds up, it really, really does. I mean, at 16 I wasnβt able to hold down a job. They never say it obviously, but you do believe that you get turned down for little Saturday jobs and stuff because of the condition, the impact it might have on their work and business. I mean, even today Iβve been turned down by an awful lot of jobs this year, so it means that my parents, literally I have no financial stability at all, they pay for everything, which is a massive drain.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, your benefits got cut and your parents lost their Carerβs Allowance for you. Did you or your parents appeal?
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yes. My mum was dealing with everything if Iβm honest, because at 16 I was really, really unwell, was seizing, we were counting days, sometimes hours, we werenβt even on weeks yet between seizures. So, I wasnβt in a place mentally or physically to be doing stuff like this. But I know that we appealed and eventually I did get put on my PIP. It was tough, it was not fun. And then only last year they, you know when you have to renew things they do an assessment for you, they turned it down. They said no, you no longer meet the standards because youβre working, blah, blah, blah. And Iβm still [laughs] waiting on the decision of the appeal.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, youβre waiting on a decision now. Are you getting benefits at the moment?
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ No. So, itβs one of those where we appealed it, the appeal failed, so we were advised to resubmit. So, literally I posted the letter two months or so ago and weβre still waiting on a decision. But my fear is, if Iβm honest that, hopefully it will be backdated to when the appeal started, but you never know because itβs a completely new submission. Itβs hard, itβs very hard.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ What is the way forward? What is the solution so that this doesnβt happen to other 16 year-olds do you think?
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I think there needs to be a wider selection of options and answers within the actual form, as well as that you have to assess every condition in its own right. And I found when I was 16 and this time around that they try and put every condition in the same box, is what Iβve seen.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, a more bespoke way of figuring out what disability benefits someone needs. Joanna, let me bring you back in here, what have the government said?
JOANNA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Weβve put all of these kinds of concerns to the government. Theyβve told us that there are going to be reforms to health and disability benefits and they will be set out within weeks. And theyβve also said that a DLA award as a child doesnβt mean automatic entitlement to PIP. Theyβve said a young person can become more able to independently manage their condition as they grow older, meaning theyβre no longer eligible for disability support. But theyβre saying that their proposals for reform would provide children, young adults and their families with the kind of support they need, and then they finished by saying that theyβre going to do this in a way thatβs fair on the taxpayer, in a way that helps those that can work secure employment.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Joanna Morris, thank you for crunching the numbers and doing that research, and Holly Crouch, thank you for telling me about your experiences of applying for Personal Independence Payment as a young person.
HOLLY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ No worries.
JOANNA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thank you.
MUSIC-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Jonny Heaver was a contestant on the ΒιΆΉΙη reality TV show The Apprentice until last week. The tutoring company owner who has a facial difference became the latest person to be fired from Lord Sugarβs boardroom, and heβs with me now for his exit interview, itβs Jonny Heaver. Hi Jonny.
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Hello. Thank you so much for having me, thanks Emma.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, describe The Apprentice for people who havenβt seen it.
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, The Apprentice is a ΒιΆΉΙη kind of reality competition show where 18 candidates battle it out to win Lord Sugarβs Β£250,000 investment. And youβre put through a series of trials and tribulations, and then one or two or more people leave each week, and then Lord Sugar invests in the personβs business who wins the process.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ You were one of the 18 this time. What was the experience like?
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Just absolutely wild. Itβs just bigger than you could ever imagine, bigger in the fact that so many tens of thousands of people apply, hundreds of camera crew. Itβs just an incredible massive experience of which I completely loved being a part of and felt very lucky to be a part of as well.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Describe the final task which led to you getting fired?
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ We were jetted off to Turkey, which is incredibly exciting, where we had to put on a corporate awayday for some very highbrow clients, they were Vodafone and they wanted us to put on a big corporate awayday for them and their highest performers in their team.
[Clip]
NARRATOR-ΜύΜύΜύΜύΜύ Back in Bodrum [Turkish music playing].
ANISA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Chisola said 250 euros max, so if you can get down to that weβll consider it.
NARRATOR-ΜύΜύΜύΜύΜύ Weighing up whether to pay for prosβ¦
ANISA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Wow!
NARRATOR-ΜύΜύΜύΜύΜύ Anisa, Emma and Jonny.
ANISA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Wow! [Applause] That was amazing, thank you so much.
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, what kind of price could you do for us?
FEMALE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ They want 500.
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ We were, kind of, thinking around about the 200 euros, so we were wondering if you could just come down any further?
FEMALE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ 350 maybe.
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Um, if we were to, kind of, um, thinking could we maybe, we could maybe go up to 230. Do you think that would be okay?
FEMALE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ No, I cannot.
NARRATOR-ΜύΜύΜύΜύΜύ Team building costs slashed.
ANISA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Oh, itβs awkward.
NARRATOR-ΜύΜύΜύΜύΜύ Dancers stood down.
[End of clip]
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I think some bits we did well but other bits we didnβt do very well. Unfortunately we got criticism that the tour part of our corporate awayday was quite boring, which I do agree with. But there was a limited amount that we could do. And then it was followed by a three course meal on a boat as well with some character building activities [laughs] from Fred.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I mean, actually nobody really likes those sorts of awaydays, or lots of people donβt, so you had a difficult audience.
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah. I feel like with me and my team in the real world Iβd just take them out for a meal.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ You put yourself up for manager that day and you didnβt manage to get that, but then you were offered the sub team leader, and you didnβt take it.
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ No.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And that seems to have not looked well. Why did you not take it?
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah, thatβs a really good question. So, I put myself forward for project manager because I really thought Iβd be good at leading the team. Iβd have put myself on the corporate side, not the catering side, so Iβd be involved in negotiating the pricing and obviously putting on the tour itself. But then obviously Chisola got voted. Fine, thatβs completely fine. But where I did not think my skillset would be utilised is by being on the catering side because my expertise does not lie in the kitchen, and actually I felt it would be disingenuous to put myself forward for leading a part of the team where my skillsets donβt lie. And I stand by that decision.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And you do have a facial difference. Iβm blind actually so can you describe for me your facial difference, is that okay?
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah. So, I was born with a giant CMN, itβs called for short, but like a melanocytic naevus covering half my face and head. Itβs a big brown birthmark, and thatβs what it was for me from birth. They do come in all shapes and sizes. It can be on your face, it can be on your body. So, obviously my parents had a really difficult time and had to make really difficult decisions in terms of whether to remove some of it or to leave it. But they decided to try and remove some of the CMN because there was a slight risk of it becoming malignant as well at that stage. So, they decided to get rid of some of it, which has left me with quite severe scarring as well. But that developed over the years into causing other problems, so I then had something called an ectropion, which is an eye droop, which caused a lot of pain and caused ingrowing eyelashes. So, Iβve had a lot of surgery since, not only to remove the CMN but to correct what went wrong with removing the CMN, if that makes sense.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Oh gosh.
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, yeah, Iβve had about 20, 25 operations since birth, so a lot of my life has been in hospital and out of hospital. But I do think that has made me more resilient, I 100% believe that, and itβs made me a good entrepreneur I think. So, I do feel Iβve got challenges, whether they were laid out on that task or not I donβt know, but definitely in the world of business for sure.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ That task it was out in the country, it was hot, did it make you feel a bit rubbish as well?
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I do cope with a lot of pain on everyday life, but Iβm kind of used to it. Because I live with constant pain it does become like a constant variable you can get used to, and Iβve got used to navigating that. But no, I donβt think it massively held me back on the task per se. But I definitely do feel itβs made me more resilient as a character on the whole, because obviously, unlike some others Iβve got to β you know what itβs like as well Iβm sure β but when you walk into a room itβs not, βOh Jonny, nice to meet you, you look fineβ itβs, βOh Jonny looks a bit differentβ and youβve to work harder to win over that person in the room.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Tell me about looking different going through school?
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Occasionally I had a mean comment, but Iβve been really lucky in my life that Iβve actually never been bullied. I think the show is another one where thatβs worked in my favour because of course I was ready and prepared and equipped for quite a lot of hate, because you know how harsh and rude people can be. But actually, of course if you search hard enough youβll always find a hater, but actually the public have really got behind me. And I found that so refreshing and so incredibly heart-warming.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And what about the other contestants?
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah, theyβve all been great. It was actually Melica, a fellow candidate, who really encouraged me to speak up about it after the show, because Iβve always been a bit like, oh I donβt really want to speak about it hugely, because I think itβs that fine line between celebrating your differences but also drawing attention to it and maybe making more of a stigma of it than there has to be. Iβve always kind of been on the fence. But actually it was Melica who spoke to me on the show and said, βYou should really celebrate it and speak about it after the showβ, and Iβm really grateful for the support she gave me on the show because if it wasnβt for her I probably might not be doing this now or even talking about it on TikTok or any of the things I have done. And Iβm pleased it wasnβt addressed actually in boardroom one for example of the show, because what Iβm also a big advocate for is actually facial differences shouldnβt be a barrier when going into new work, whether thatβs The Apprentice or whether thatβs actually just a normal job. It shouldnβt be something thatβs immediately spoken about and quizzed upon in the first boardroom or the first day of work. But actually Iβm really glad I did talk about it later in the process.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, what do you do when youβre not on reality television?
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ [Laughs] I love my own business. Honestly, I live to work, but I do also have a social life as well. But my company is a tutoring company where we work with young people and help them equip their academic goals with, I guess, financial ethics being right at the centre of what we do. Iβm really happy to say that Iβve got a team of 35 now and yeah, weβre going from strength to strength. And The Apprentice has definitely accelerated that growth as well so Iβm very grateful.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Oh, thatβs really good. And is it secondary school or university?
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, we do from three years old, learning to write and read, right up to 18 plus and adult education as well, but including GCSEs and A-levels, so we do everything.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And is it all, like, high-achieving children from families who can afford it? Or do you find, like we hear about a lot more disabled people struggling to get school places, struggling to get the right school places, maybe some more people being home schooled, have you found the clientele changing?
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Well, it is a big mixture because obviously one-to-one tutoring does have that stigma and it is something thatβs expensive. But what weβre very transparent about at Achiever is people do pay different prices. Sometimes weβll take a cut from someone who can afford it and use the money we make from that to perhaps provide tutoring to a family who canβt. Financial ethics and accessibility is what makes Achiever different, and we really try and stay true to that.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And what kinds of families would you support with a cheaper price tag?
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Every familyβs different, but it could be someone whose child has got a disability. It could be a family who is a single parent with multiple children who donβt have that income or capacity to provide a lot of teaching for their own children so need a bit of extra support. It could be someone who is suffering with mental health and needs that extra boost outside of school. We work with a lot of students who actually realty struggle going in to school, and I think this is a huge pool of students who get forgotten by the system as well.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah, you did say when you were going into The Apprentice, you said, I want to prove that nice guys can win.
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yes.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And youβre not Β£250,000 richer, you were fired, but do you think youβve proven that anyway?
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I hope so, I really do hope so. And obviously it is a reality show so there will be moments where itβs heated and there will be moments of heated discussion. But I do believe I stayed true to myself throughout all the episodes, and I didnβt do anything that I wouldnβt do in my own business in real life. And I do think I treated people well and with respect, and did prove that business doesnβt have to be as cutthroat as itβs sometimes perhaps portrayed on TV, and that the nice guy can go far. Maybe not win on this occasion [laughs], but that nice guy can definitely go far and do well in business.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Well, you got to week 6 so itβs no mean feat. Whatβs next?
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Whatβs next? So, Iβm still hugely committed to my business, and weβre looking for investment still, because it hasnβt come from Lord Sugar. Weβre at a really exciting time for growth so very exciting.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ The Apprentice continues on ΒιΆΉΙη One on Thursday nights at 9pm, and itβs also on iPlayer. Jonny Heaver, thank you so much for talking to me on Access All.
JONNY-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thank you so much for having me. Itβs been a pleasure.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ That is about it for this episode. And actually to be honest I donβt usually call disabled people brave, we donβt like it, but wasnβt Jonny Heaver brave to put himself in that position in that boardroom? And what a great person to speak to. I learnt a lot about the inner workings of The Apprentice there as well. You can contact us, tell us what you think we should be talking about on accessall@bbc.co.uk. 0330 123 9480 is our WhatsApp number. And you can find us on social media, weβre @ΒιΆΉΙηAccessAll on X and on Instagram. And, if you havenβt already done so, please do subscribe to Access All on ΒιΆΉΙη Sounds. Hit that big button and youβll get us on your device every single week. See you later. Bye.Μύ
[Trailer for Newscast]
CHRIS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ You know when youβre worried about something, but then you talk to your friend who knows more about the subject than you do, and straightaway you start to feel better? Thatβs what we try and do every day on Newscast.
MALE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Now, theyβre saying that that would be simple to do, it would give everyone certainty.
CHRIS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ We talk to people who are in the news:
FEMALE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ You were chasing me round with a plate of cheese.
CHRIS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ We talk to people who know whatβs going on in the news:
MALE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ At least I didnβt get up and slap anybody.
CHRIS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ We talk to people who understand what the news means:
MALE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I think that heβs decided heβs going to listen, and then he might just intervene.
CHRIS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And we talk to the best ΒιΆΉΙη journalists, asking the most important questions:
CHRIS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Whatβs wrong with chinos? You donβt want them, people to start wearing chinos?
FEMALE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Donβt start me, Chris.
CHRIS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thatβs Newscast from ΒιΆΉΙη News, the podcast that knows a lot of people who know a lot about the news.
FEMALE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And I was like, go on Kate, put some more welly into it!
CHRIS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Listen to Newscast every weekday on ΒιΆΉΙη Sounds.
CHRIS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Iβm glad I asked that.
FEMALE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Iβm very glad that you asked that!
Μύ
Μύ
Μύ
Μύ
Μύ
Podcast
Get the latest episodes of the Access All podcast the moment a new episode goes live!
Podcast
-
Access All: Disability News and Mental Health
Weekly podcast about mental health, wellbeing and disabled people.