The 'not the welfare bill' episode
And how Paul Carter almost made the Paralympics.
This week, the programme is about cute disabled kids, how attitudes to disabled people are different in New York, kettles, faces, headlines, hackathons and a brilliant woman who's bringing education to kids spending time in a hospice in Wales.
Paul Carter joins Emma Tracey in a show where we've deliberately edited out all the stuff about that welfare bill for the sake of all our sanities. It'll be back again soon enough though.
It's disability like in real life, on a podcast, from the 麻豆社. You're welcome.
PRODUCERS: Adele Armstrong and Alex Collins
RECORDING AND MIX: Dave O'Neill
SERIES PRODUCER: Beth Rose
EDITOR: Damon Rose
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Transcript
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03rd July 2025
bbc.co.uk/accessall
Access All 鈥� Ep 166
Presented by Emma Tracey
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EMMA-听听听听听听听听听听听听听听 There is a summer of sport ahead of us, Paul Carter. You love a bit of football, don鈥檛 you? That鈥檚 coming up in the summer at some point.
PAUL-听听听听听听听听听听听听听听听听 I do. I love a bit of all sports to be honest. But Wimbledon is on at the minute. Are you excited about that?
EMMA-听听听听听听听听听听听听听听 I have to say I鈥檓 more into the kind of pageantry than I am the actual sport. But what I do love is a bit of social media scrolling. And there was a clip this week that went absolutely viral of a cute disabled kid, and I did like the clip, it was a nice clip. Do you want to hear a bit of it?
PAUL-听听听听听听听听听听听听听听听听 I do, yeah.
[Clip]
MALE-听听听听听听听听听听听听听听听 How are you?
RAVI-听听听听听听听听听听听听听听听听听 Yeah, I鈥檓 good, thanks.
MALE-听听听听听听听听听听听听听听听 Yeah, I should think you are. You had I hope it was a nice surprise. Who came down and surprised you this afternoon?
RAVI-听听听听听听听听听听听听听听听听听 Oh yeah, Phil Tufnell.
MALE-听听听听听听听听听听听听听听听 Oh no, did he? [Laughter] he鈥檚 so annoying, isn鈥檛 he?
RAVI-听听听听听听听听听听听听听听听听听 No, I like seeing him. This is a great surprise, yeah. I鈥檓 so excited.
MALE-听听听听听听听听听听听听听听听 [Laughs] I can see that you are.
[End of clip]
EMMA-听听听听听听听听听听听听听听 So, let me put this in context for you. This is Ravi Chahal, he鈥檚 12, he鈥檚 blind and he鈥檚 a massive, massive cricket fan.
PAUL-听听听听听听听听听听听听听听听听 Love it.
EMMA-听听听听听听听听听听听听听听 And this clip was from when he got to go into the test match special commentary box. He actually went on to show that he鈥檚 an incredibly knowledgeable cricket fan, and he also plays cricket with the Super 1s, which is like a disability project in Northumbria. So, all in all great guy, and it was a disabled kid viral clip that I didn鈥檛 hate.
PAUL-听听听听听听听听听听听听听听听听 [Laughs]
EMMA-听听听听听听听听听听听听听听 Now, Paul, I know you鈥檙e into sport now, but you actually were about to be in the Paralympics once. Is that the case? Because I鈥檝e never seen you on that podium.
PAUL-听听听听听听听听听听听听听听听听 [Laughs] well, I think that鈥檚 a slight bit of a reach. But yeah, I used to, way, way, way back in time, I used to swim competitively. You wouldn鈥檛 believe it to look at me now, trust me. But yeah, I used to swim competitively, and I was the national junior champion for two years, and I was the British record holder for a while for the juniors.
EMMA-听听听听听听听听听听听听听听 In what category?
PAUL-听听听听听听听听听听听听听听听听 I used to swim breast stroke. I was an SB1.
EMMA-听听听听听听听听听听听听听听 What does that mean, SB1?
PAUL-听听听听听听听听听听听听听听听听 So, it鈥檚 kind of like, I was the most disabled. I don鈥檛 know if I win a prize just for that [laughter].
EMMA-听听听听听听听听听听听听听听 How disabled do you have to be to be an SB1?
PAUL-听听听听听听听听听听听听听听听听 Well, not have arms or legs is a good start [laughs].
EMMA-听听听听听听听听听听听听听听 So, what did you used to swim if you don鈥檛 have arms or legs?
PAUL-听听听听听听听听听听听听听听听听 I鈥檝e got bits of arms and legs.
EMMA-听听听听听听听听听听听听听听 So, you were swimming to quite a high level. And what happened next?
PAUL-听听听听听听听听听听听听听听听听 Yeah. And then my second year of competing in the nationals I was in my race and I got disqualified. It was the year before the Atlanta Paralympics and loads of people from that event got selected, so I will never know.
EMMA-听听听听听听听听听听听听听听 What disqualified you?
PAUL-听听听听听听听听听听听听听听听听 Nothing to do with, like, doping or anything.
EMMA-听听听听听听听听听听听听听听 Really?
PAUL-听听听听听听听听听听听听听听听听 [Laughs] when you finish with breast stroke part of the rule is you have to touch the board with both hands. And I was very tired, Emma, and I just touched with one, and that was it, DQ鈥檇.
EMMA-听听听听听听听听听听听听听听 That is an anticlimax [laughter].
PAUL-听听听听听听听听听听听听听听听听 But what鈥檚 funny is I appealed.
EMMA-听听听听听听听听听听听听听听 Did you?
PAUL-听听听听听听听听听听听听听听听听 And said that my left arm is longer than my right, which it is, hoping that I鈥檇 found some kind of disability loophole. But my lane judge was the same lane judge who had seen me in my regional qualifiers a couple of months beforehand and had seen me touch with two arms.
EMMA-听听听听听听听听听听听听听听 Darn it, small world this Paralympic swimming malarkey.
PAUL-听听听听听听听听听听听听听听听听 It is indeed. So, I immediately retired after that.
EMMA-听听听听听听听听听听听听听听 Did you?
PAUL-听听听听听听听听听听听听听听听听 Yeah.
EMMA-听听听听听听听听听听听听听听 And did you take up another sport?
PAUL-听听听听听听听听听听听听听听听听 No.
EMMA-听听听听听听听听听听听听听听 Okay.
PAUL-听听听听听听听听听听听听听听听听 I took up drinking instead [laughs].
EMMA-听听听听听听听听听听听听听听 Ah! You took up travelling the world doing technology journalism for the 麻豆社 instead.
PAUL-听听听听听听听听听听听听听听听听 Yeah.
MUSIC-听听听听听听听听听听听听听听 Theme music.
EMMA-听听听听听听听听听听听听听听 Hello, I鈥檓 Emma Tracey and this is Access All, the weekly podcast where you will find the best disability news, chat and interviews. Later I鈥檒l be talking to Katie who works for a children鈥檚 hospice teaching kids who are too ill to go to school, and George, one of her very enthusiastic students. And we drop in on a unique hackathon where disabled people design apps and products to make those little life challenges that bit easier. So, have a little think about what you would like to hack, what you would like to design to make your life easier and we will come back to that in a bit.
听听听听听听听听听听听听听听听听听听听听听听听听听听听 Contact us. We鈥檙e on email accessall@bbc.co.uk, and you can find us on social media @麻豆社AccessAll on X and Instagram as well. And please, if you haven鈥檛 done so already, pop onto 麻豆社 Sounds and subscribe to us.
听听听听听听听听听听听听听听听听听听听听听听听听听听听 Now, he is back, he鈥檚 with me throughout, it is 麻豆社 tech journo, Paul Carter. Hello. Welcome back.
PAUL-听听听听听听听听听听听听听听听听 Hello. Thank you for having me back.
EMMA-听听听听听听听听听听听听听听 Thank you for being here. And we鈥檙e going to talk about some headlines now, aren鈥檛 we?
PAUL-听听听听听听听听听听听听听听听听 We are indeed.
EMMA-听听听听听听听听听听听听听听 Scope have just released their annual results of their disability price tag report, haven鈥檛 they?
PAUL-听听听听听听听听听听听听听听听听 Yeah, that鈥檚 right. And they鈥檙e saying that the costs of being disabled are due to rise by almost 12% in the next five years. And that鈥檚 based on a survey and forecast from the Office for Budget Responsibility, saying that the extra cost is going to go up to almost 拢1,100 per month, up 拢90 from last year. And what I find really interesting about this number is that that鈥檚 really cut through with people, I think especially against the backdrop that we鈥檙e seeing against the welfare reforms and everything. It鈥檚 quite a stark reminder that things do cost us a little bit more money.
EMMA-听听听听听听听听听听听听听听 They do cost a little bit more money. Do you have a lot of extra costs, do you think?
PAUL-听听听听听听听听听听听听听听听听 Yeah, I was thinking about this this morning. It鈥檚 quite hard to quantify, isn鈥檛 it, when you sit down and actually think about it. But when you factor in all of the things that maybe you spend money on that perhaps your friends and peers don鈥檛 do you start to realise the little things. And it can be really small things, can鈥檛 it, like I have to buy food that comes pre-chopped or prepared, which perhaps other people don鈥檛 do. And I think it鈥檚 those little incremental costs rather than the really big things that kind of add up.
EMMA-听听听听听听听听听听听听听听 And why do you have to do that?
PAUL-听听听听听听听听听听听听听听听听 Because I don鈥檛 have hands, and using sharp knives is probably quite dangerous.
EMMA-听听听听听听听听听听听听听听 Yeah, you鈥檇 just get it tied onto your hand or something, couldn鈥檛 you, or onto your arm?
PAUL-听听听听听听听听听听听听听听听听 [Laughs] like Edward Scissorhands.
EMMA-听听听听听听听听听听听听听听 Yeah, you could just have permanent blades at the end of your arms, no?
PAUL-听听听听听听听听听听听听听听听听 [Laughs] fine yeah, let鈥檚 go with that. We鈥檝e solved the PIP problem just there.
EMMA-听听听听听听听听听听听听听听 I mean, I鈥檝e been thinking about it too, and there are so, so many extra costs; a lot of them are around transport for me, but also delivery charges on things, that鈥檚 a big one, even extra laundry because I can鈥檛 see whether there are stains on clothes or not. It鈥檚 just little tiny things like that, isn鈥檛 it?
PAUL-听听听听听听听听听听听听听听听听 Yeah, absolutely. And I think it鈥檚 really interesting the extra costs that you have might be totally different to the ones that I have, and the same for the next person. It鈥檚 really variable by person, isn鈥檛 it?
EMMA-听听听听听听听听听听听听听听 It is. And some of them are little and some of them are really big. I mean, when I hear about the price of disability equipment, and even there鈥檚 a piece of software that I need at home at the moment, but it鈥檚 like 700 and something quid, I can鈥檛 afford that. I have to save up for that with PIP to buy it. It鈥檚 my screen reader for the laptop at home where I do all the house admin and help the kids with stuff, so it鈥檚 actually quite an important thing. But anyway, enough about my extra costs.
听听听听听听听听听听听听听听听听听听听听听听听听听听听 I think a couple of things that popped out for me this week were around disabled people鈥檚 independence being swiped away in a second just by one change, one thing that鈥檚 happened. For example, there鈥檚 a guy in Glasgow, Lucas Honey, who hasn鈥檛 been able to leave his building for six months because they changed the locks and now the door is too heavy for him to push open.
PAUL-听听听听听听听听听听听听听听听听 Yeah, it鈥檚 really interesting that these what other people might see as really small or insignificant things can have a really significant impact on disabled people鈥檚 lives and independence. You often see responses when organisations are challenged over stuff like this, and it鈥檚 like, oh yeah, yeah, we see this as an absolute priority. And it鈥檚 like, well you don鈥檛 really seem to be doing anything about it to fix it. But it was quick enough, like you say, to sort of swipe someone鈥檚 independence away. I think that鈥檚 a really interesting dynamic there.
EMMA-听听听听听听听听听听听听听听 The police said that it was a good idea to put these locks in because it would help with security, and then the right of reply, when someone wrote the story, from the council said that is was a priority to fix it so that he could get in and out and to do an automatic door thing. It takes ages and they say it's really expensive and stuff like that. But when you think about someone not being able to leave without help for six months, and you don鈥檛 know what kind of support system that person has, you know. They have a carer for a couple of hours a week, and they鈥檙e saying that because they need to go out when their carer is there they can鈥檛 get anything done around the house. It鈥檚 like a vicious cycle, isn鈥檛 it?
PAUL-听听听听听听听听听听听听听听听听 It is, yeah. And it comes back to that thing, I think it鈥檚 just a lack of wider awareness of how those small changes can have such a big impact on people鈥檚 lives.
EMMA-听听听听听听听听听听听听听听 I mean, absolutely nothing near that, but when people turn the audio description off on my television I get the rage. But you know what, there was another story, I literally learnt something 鈥� I鈥檝e been doing this for 20 years this disability focused journalism lark, I thought I鈥檇 heard a lot of things around wheelchairs 鈥� but some people use these powered attachments that kind of help tow you along. There was a guy, again with a brilliant name by the way, Israel Vidal, who has this wheel at the front of his wheelchair that鈥檚 powered and helps tow him along. But apparently he needs a licence and registration for it; it鈥檚 treated as a vehicle. And he was at a concert with his sister for his birthday and he fell out of his wheelchair and landed on his head and went unconscious and had to go to hospital, which is really terrible. But when he was in hospital the police, the Met Police, confiscated his wheelchair because of this electric powered attachment. And everybody told the police, like his sister, the OT, the hospital that the attachment could be detached, it鈥檚 an attachment, it could be detached, but they didn鈥檛 take that on board so they took his wheelchair and the attachment for 19 days. Amongst their different rights to reply was the hospital gave him a wheelchair. But Paul, you鈥檝e had a powered wheelchair, right, you know that every wheelchair for every person is different.
PAUL-听听听听听听听听听听听听听听听听 Totally, totally, and it almost certainly wouldn鈥檛 have been suitable. But I鈥檓 very similar to you, I had no idea that was a thing. I鈥檝e always quite fancied the idea of having one of those attachments for a chair. I can鈥檛 push a manual wheelchair, not that I use a manual wheelchair to get around much, but there are times when it would be helpful walking long distances. And I鈥檝e always thought the idea of clipping one of those on would be great. The only thing is, I have to say, the one in question in this did look quite big, so I don鈥檛 know if there are specific regulations around the sizes of them. But I had no idea that you needed a licence or anything for those.
EMMA-听听听听听听听听听听听听听听 So, what did his look like? What did Israel鈥檚 鈥� I just love his name, Israel Vidal.
PAUL-听听听听听听听听听听听听听听听听 It鈥檚 quite chunky. It had, like, a big box on the front of it. I don鈥檛 know the specifics because I鈥檝e only seen the pictures, but it looked quite chunky. But yeah, I had no idea that was a thing either. But again, what we were saying before, it comes back to that thing that I think there鈥檚 just a disconnect there between not really comprehending the ramifications of that decision that someone is making when it comes to disabled people鈥檚 independence.
EMMA-听听听听听听听听听听听听听听 Well, you just kind of feel as well that when he was getting that attachment would someone not have popped up and said, you know this is treated as a vehicle and that it needs x documentation. Someone from the charity Wheels for Wellbeing said it鈥檚 an out of date law, she said, that鈥檚 her opinion, and that it needs more awareness around it so that people know if they have these electric attachments they need to be treated differently or that they can get the law changed around them. It鈥檚 just something I didn鈥檛 know.
PAUL-听听听听听听听听听听听听听听听听 If you and me didn鈥檛 know it was a thing then chances are lots of other people didn鈥檛 know it was a thing either.
EMMA-听听听听听听听听听听听听听听 Absolutely. Now, regular listeners, Paul, will remember Niamdh Braid from Fife in Scotland, which is where I come from. We chatted to her a months ago about her fight 鈥� which she won by the way 鈥� to get a BSL interpreter at school. She鈥檚 an absolute firecracker, into everything, trying to change all sorts of laws and decisions around rights for deaf people. And just this week a new education bill came out in Scotland which legally recognises teachers and students who use BSL. The BSL act came out in Scotland in 2016, so they鈥檝e been waiting on this education bill for a long time, and they hope that it will make it easier for deaf teachers and students to get BSL support at school. And Niamdh, well done again for campaigning to change a law. What a woman. She鈥檚 only like 17 or something.
PAUL-听听听听听听听听听听听听听听听听 That鈥檚 amazing. Well done, Niamdh. It鈥檚 good to hear a successful campaigning story, isn鈥檛 it?
EMMA-听听听听听听听听听听听听听听 It is, and it鈥檚 lovely to see young vibrant disabled people pushing forward and campaigning. I just really, really love to see it. Paul, tell me, I鈥檝e gotten this far in the podcast without asking about your work/holidays.
PAUL-听听听听听听听听听听听听听听听听 [Laughs]
EMMA-听听听听听听听听听听听听听听 You鈥檝e just been to New York city, babe.
PAUL-听听听听听听听听听听听听听听听听 I have. I鈥檝e just had a week in the Big Apple.
EMMA-听听听听听听听听听听听听听听 What did you notice? What happened? Anything disability related you can feed back to use on Access All?
PAUL-听听听听听听听听听听听听听听听听 It鈥檚 a little bit strange. I mean, I鈥檝e spent quite a lot of time in the US and New York in particular, and I absolutely love it. But it does always strike me that attitudes towards disability are very slightly different there, let鈥檚 put it that way. The number of times I get approached by people in the street wanting to ask me questions or tell me how inspirational I am 鈥� which we all know I am, but鈥�
EMMA-听听听听听听听听听听听听听听 Yeah, totally, an inspiration to us all, am I right, gallery?
PAUL-听听听听听听听听听听听听听听听听 [Laughs] but sadly I don鈥檛 get it walking down the street in London every other day, whereas I do鈥�
EMMA-听听听听听听听听听听听听听听 That must do a lot for your ego? Your ego must be smashed.
PAUL-听听听听听听听听听听听听听听听听 Yeah, but you know, sometimes you want to pull your hat down and walk along and mind your own business. The other day I was buying a pair of trousers in Macy鈥檚 and a man wanted to come over and ask me if I was a victim of toxic shock syndrome [laughs].
EMMA-听听听听听听听听听听听听听听 Oh wow! Oh my goodness. So, because of how you look you get asked are you a victim of this, that or the other because of the length of your arms and your legs?
PAUL-听听听听听听听听听听听听听听听听 Absolutely, yeah. which again, I鈥檓 not saying it never happens here, of course it does, but it鈥檚 something I feel a little bit more exposed to. I don鈥檛 know whether it鈥檚 just a cultural thing or what, but it鈥檚 always a bit of a shock to the system.
EMMA-听听听听听听听听听听听听听听 What age are you now?
PAUL-听听听听听听听听听听听听听听听听 God, do I have to say on air?
EMMA-听听听听听听听听听听听听听听 Sort of ballpark.
PAUL-听听听听听听听听听听听听听听听听 I am in my early to mid-40s, Emma.
EMMA-听听听听听听听听听听听听听听 Same. But I suppose the reason I ask that is because I think my answers have differed over the years. What do you say to people now when they ask you have you been a victim of x, y, z, or did you get that because?
PAUL-听听听听听听听听听听听听听听听听 I mean, I didn鈥檛 really engage with this guy because it kind of caught me a little bit by surprise, so I just said no and walked off.
EMMA-听听听听听听听听听听听听听听 That鈥檚 a reasonable response.
PAUL-听听听听听听听听听听听听听听听听 I think I鈥檓 like you, my responses have kind of changed over time. But they also change depending on the circumstance as well, do you know what I mean? If you鈥檝e had a really good day and you鈥檙e feeling pretty good you might be a little bit more carefree about it, I don鈥檛 know. Whereas sometimes you just want to be left alone really, don鈥檛 you?
EMMA-听听听听听听听听听听听听听听 Yeah, you do. And do you think people ask you those questions because you鈥檙e on the telly or because of how you look?
PAUL-听听听听听听听听听听听听听听听听 Oh, I think it鈥檚 absolutely because of how I look. I don鈥檛 think it鈥檚 because I鈥檓 on the telly at all.
EMMA-听听听听听听听听听听听听听听 Well, maybe you just look like someone who will answer. You look like a nice personable sort of fella.
PAUL-听听听听听听听听听听听听听听听听 I鈥檝e got a welcoming face maybe.
EMMA-听听听听听听听听听听听听听听 Yeah. Have you got a welcoming face?
PAUL-听听听听听听听听听听听听听听听听 [Laughs] I don鈥檛 know. I鈥檒l have to ask around. Let鈥檚 do a survey at some point.
EMMA-听听听听听听听听听听听听听听 Has Paul got a welcoming face? Do I have a welcoming face?
PAUL-听听听听听听听听听听听听听听听听 You have a very welcoming face, yeah.
EMMA-听听听听听听听听听听听听听听 Thank you. What constitutes a welcoming face? Because I can鈥檛 see. You鈥檙e going to educate me here.
PAUL-听听听听听听听听听听听听听听听听 I don鈥檛 know. It鈥檚 like smiley, like wide eyes 鈥� wide eyes? Yeah, I guess so.
EMMA-听听听听听听听听听听听听听听 I mean, my eyes move around, does that constitute a welcoming face or is that just a blind face?
PAUL-听听听听听听听听听听听听听听听听 [Laughs] I鈥檓 not sure I want to be drawn on that.
EMMA-听听听听听听听听听听听听听听 Why?
PAUL-听听听听听听听听听听听听听听听听 You鈥檝e got a very welcoming face, Emma. You鈥檝e got a very welcoming face.
EMMA-听听听听听听听听听听听听听听 Thank you. You鈥檙e welcome [laughter].
PAUL-听听听听听听听听听听听听听听听听 See, it鈥檚 weird, isn鈥檛 it?
EMMA-听听听听听听听听听听听听听听 I like weird. You are listening to Access All. Please do search for us on 麻豆社 Sounds and hit that big subscribe button.
MUSIC-听听听听听听听听听听听听听听 We鈥檙e not just a podcast. Find Access All on social media and read our articles on the 麻豆社 News website.
EMMA-听听听听听听听听听听听听听听 There are over 50 children鈥檚 hospices in the UK, but only one person doing Katie Simmon鈥檚 job. Katie is a children鈥檚 rights and education practitioner at Ty Hafan Hospice in Wales. She teaches children who aren鈥檛 well enough to go to school full time. Katie is here with me to tell me a bit more about her work. Hi Katie.
KATIE-听听听听听听听听听听听听听听听 Hi, Emma.
EMMA-听听听听听听听听听听听听听听 Lovely, lovely to have you on Access All. We鈥檝e also got George on the line. George is 17, he has spinal muscular atrophy and Katie goes and visits George at home. Hi George.
GEORGE-听听听听听听听听听听 Hello.
EMMA-听听听听听听听听听听听听听听 What are you up to today, George?
GEORGE-听听听听听听听听听听 Not much. I鈥檝e not got much on today except doing this podcast with you all, which I鈥檓 very excited for.
EMMA-听听听听听听听听听听听听听听 And where are we talking to you from? Are you in your bedroom?
GEORGE-听听听听听听听听听听 Yes, I鈥檓 in my bedroom in my bed because I cannot go to school today [laughs].
EMMA-听听听听听听听听听听听听听听 Okay. Now, let鈥檚 go back to you, Katie, and let鈥檚 go back to basics actually. What is a children鈥檚 hospice?
KATIE-听听听听听听听听听听听听听听听 A children鈥檚 hospice is a really remarkable place. It鈥檚 somewhere where families can visit and stay when they鈥檙e needing that extra support with the child or children that they have that might be suffering with any life-shortening conditions. So, it鈥檚 kind of that safe haven, that safe space that they can come and just be themselves as a family.
EMMA-听听听听听听听听听听听听听听 And what happens there, Katie?
KATIE-听听听听听听听听听听听听听听听 So, we鈥檝e got a variety of things that happen here. We鈥檝e got a very lovely accessible park. We鈥檝e got our own hydro pool. We have various therapy spaces, and a lovely communal space for our families to meet, along with bespoke bedrooms for the children that we care for and their families.
EMMA-听听听听听听听听听听听听听听 And it鈥檚 not just for children who are coming close to the end of their lives, is it?
KATIE-听听听听听听听听听听听听听听听 Definitely not. The support that we provide can be from diagnosis right through until their death. We try and reach as many families as we can. But unfortunately currently we are only meeting the needs of every one in ten families in Wales that are struggling with a child that has a life-shortening condition.
EMMA-听听听听听听听听听听听听听听 And why is that?
KATIE-听听听听听听听听听听听听听听听 Mainly down to funding, Emma.
EMMA-听听听听听听听听听听听听听听 What is your job? It鈥檚 a children鈥檚 rights and education practitioner, what is that?
KATIE-听听听听听听听听听听听听听听听 Yeah, what a unique role and amazing job title, I鈥檝e got to say, Emma. I鈥檓 very blessed and honoured to have this role. My experience is a primary school teacher for over 23 years, and I just wanted to give something different, come out of teaching, so that鈥檚 when I joined Ty Hafan Hospice here. And I immediately recognised that there was a need for some bespoke education to take place, and what was happening to these children that couldn鈥檛 access education because they were too unwell to get to school. So, having had a visit from the children鈥檚 commissioner in Wales we spoke about education and we spoke about what it looked like for children in palliative care. And my role every day that I visit families and children and young people, it is different every day. For an example, I can deliver individual educational sessions for children that can鈥檛 get to school because they鈥檙e too unwell. I will visit the home and deliver an hour, hour and a half of fun learning, all tailored around the child鈥檚 likes and interests. So, that is normally for a period of over eight to 12 weeks.
EMMA-听听听听听听听听听听听听听听 And what kind of learning do you do in those sessions?
KATIE-听听听听听听听听听听听听听听听 It鈥檚 always got to be fun. So, for example I鈥檝e got a wonderful young person who鈥檚 ten years old, doesn鈥檛 access education at the moment, but his passion and his love is Roblox. So, my lessons are based all around Roblox.
EMMA-听听听听听听听听听听听听听听 That鈥檚 a computer game?
KATIE-听听听听听听听听听听听听听听听 It is, it鈥檚 a computer game that he really enjoys playing. It鈥檚 his way of release, it鈥檚 his way of communicating with other people. He鈥檚 really knowledgeable on it. So, I will plan English lessons around Roblox where we describe a Roblox figure, I will design maths activities, times tables activities based around Roblox, or an art lesson. So, it鈥檚 all tailored around that individual and their likes.
EMMA-听听听听听听听听听听听听听听 That鈥檚 amazing. I鈥檓 going to come back to some of the other things that you do shortly, Katie, but I do want to bring in George to get to know you a little bit. So, George, why do you use the hospice and what do you do there?
GEORGE-听听听听听听听听听听 I use the hospice because most of my life is basically spent in my bedroom because I can鈥檛 go out often because of my disabilities and just difficulties with physically getting up and out. So, Ty Hafan will take me about four times a year for about five days and I can play games. I even sometimes go out to Barry Island to play on the arcades.
EMMA-听听听听听听听听听听听听听听 Barry Island from Gavin and Stacey! We all know where that is. And how did you start working with Katie?
GEORGE-听听听听听听听听听听 Katie, [laughs] when I first met her she was very not used to my sense of humour.
EMMA-听听听听听听听听听听听听听听 She wasn鈥檛 used to your sense of humour. Why, what鈥檚 your sense of humour like?
GEORGE-听听听听听听听听听听 I have a very morbid sense of humour. But I鈥檓 good at bringing people around to it. So, for the first few months of knowing Katie I was bringing her through to my sense of humour.
EMMA-听听听听听听听听听听听听听听 So, what do you joke about, George? What kinds of jokes did you force upon poor Katie before she was used to them?
GEORGE-听听听听听听听听听听 Well I am a teenager so you can imagine the type of jokes are very crude and鈥�
EMMA-听听听听听听听听听听听听听听 And morbid, as you said?
GEORGE-听听听听听听听听听听 Yes, crude and morbid, yeah, your typical jokes that people wouldn鈥檛 often say without, like, do you know what I mean, like鈥laughs].
EMMA-听听听听听听听听听听听听听听 You can鈥檛 think of any examples that you can say on the podcast, is that what you鈥檙e telling me?
GEORGE-听听听听听听听听听听 Yeah, basically [laughs].
EMMA-听听听听听听听听听听听听听听 Okay. When Katie comes to your house what happens in the hour or two that Katie鈥檚 with you?
GEORGE-听听听听听听听听听听 Maybe we鈥檒l learn a bit of history because I like history. Or sometimes politics, I love my politics. Katie even came out to my school a couple of weeks ago.
EMMA-听听听听听听听听听听听听听听 Katie came to your school, is that what you said, George?
GEORGE-听听听听听听听听听听 Yeah, Katie came up to my school, she met my teachers, my TAs, my friends, the head of the school, and they all loved Katie.
EMMA-听听听听听听听听听听听听听听 Oh, I鈥檇 say she鈥檚 absolutely crimson on the line there, George. Tell me, so you mix learning with Katie with your local school. How often do you get into your local school?
GEORGE-听听听听听听听听听听 At the minute we鈥檙e aiming for once a week. It鈥檚 a bit difficult at the minute.
EMMA-听听听听听听听听听听听听听听 Okay. So, once a week for a whole day?
GEORGE-听听听听听听听听听听 Yeah, usually.
EMMA-听听听听听听听听听听听听听听 And how do you feel after a day at school?
GEORGE-听听听听听听听听听听 A bit tired but, you know, who wouldn鈥檛 be? I鈥檓 a bit sore because getting up hurts my hips and my legs, and they just ache. So, I鈥檓 a bit in pain afterwards, which is why it鈥檚 nice then when Katie comes up to the house to talk and teach.
EMMA-听听听听听听听听听听听听听听 Right. You must spend quite a lot of time by yourself or with your family. It鈥檚 nice to have something different?
GEORGE-听听听听听听听听听听 It is very nice, I鈥檓 not going to lie, it is very nice. So, having Katie come out, as well as the teaching, it鈥檚 also just brilliant company and it just makes time a little less lonely.
EMMA-听听听听听听听听听听听听听听 Oh Katie, you must be just absolutely beaming listening to George there?
KATIE-听听听听听听听听听听听听听听听 A mixture of emotions, Emma, I鈥檝e got to be honest. I鈥檝e got tears on my eyes. I mean, this boy is remarkable. As a 17 year-old his outlook on life is amazing. And I鈥檓 blessed that I can work with him. But unfortunately this is common, this is really common for children and young people that their health conditions are getting in the way of their education, and that鈥檚 really not fair.
EMMA-听听听听听听听听听听听听听听 And Katie, some might say what鈥檚 the point in educating children and young people who may not make it to adulthood. What would you say to that?
KATIE-听听听听听听听听听听听听听听听 That is unfortunately something that I hear often, and it absolutely devastates me when I hear it. And that鈥檚 why I鈥檓 all for trying to change that narrative. They鈥檙e still young people, they still might have years ahead of them. Medicine鈥檚 come on so much that these children and young people are living longer. And why should they be just at home, for example like George, in his bedroom not being educated, not being stimulated? Because let鈥檚 think education brings far more than just learning; it brings a whole variety of skills and ,more importantly for that young person, some social skills to interact with other peers and young people. And certainly for George he is fastly approaching 18 and this time next year he will finish in his mainstream school.
EMMA-听听听听听听听听听听听听听听 Yeah, George, what are you going to do next?
GEORGE-听听听听听听听听听听 So, at the minute, as Katie said, this time next year I鈥檒l be leaving school so either going to a nearby college or another one that I am hoping for, which is called Star College. It鈥檚 a specialist college up in Cheshire.
EMMA-听听听听听听听听听听听听听听 Is that National Star?
GEORGE-听听听听听听听听听听 Yes, it is.
EMMA-听听听听听听听听听听听听听听 Oh, I鈥檝e been there. It鈥檚 awesome.
GEORGE-听听听听听听听听听听 You鈥檝e been there? Yeah.
EMMA-听听听听听听听听听听听听听听 Aha. So, you鈥檇 like to go there?
GEORGE-听听听听听听听听听听 Yeah, so hopefully I鈥檓 planning for a residential there. And I鈥檓 probably going to pursue drama.
EMMA-听听听听听听听听听听听听听听 Oh drama, you鈥檇 like to do drama?
GEORGE-听听听听听听听听听听 Yes. I have a knack for theatrics.
EMMA-听听听听听听听听听听听听听听 You have a knack for theatrics? [Laughs]
GEORGE-听听听听听听听听听听 Yeah. I want to help people, but I want to help them distract them from their struggles, even for just two hours while I do my thing, make people laugh, quell their pain a bit by laughter.
EMMA-听听听听听听听听听听听听听听 Well, I have a feeling that I鈥檓 going to be talking to you again in the future, George. Please stay in touch with me because I definitely want to see what鈥檚 happening with you.
GEORGE-听听听听听听听听听听 Thank you so much. It鈥檚 been lovely.
EMMA-听听听听听听听听听听听听听听 Well, if you鈥檝e used a hospice service, if you鈥檙e someone who could use Katie鈥檚 job in your life, or if you have a different experience all together please do get in touch with us, we love to hear your stories. You can send us a message on WhatsApp 0330 123 9480. Or you can send us an email accessall@bbc.co.uk. And we鈥檙e on social media on X and Instagram @麻豆社AccessAll.
听听听听听听听听听听听听听听听听听听听听听听听听听听听 Paul Carter still with me. And Paul, you鈥檙e the 麻豆社 tech journalist extraordinaire so you might know a bit more about this than I do, the European Accessibility Act came out 鈥� not came out, what would you say?
PAUL-听听听听听听听听听听听听听听听听 Came in.
EMMA-听听听听听听听听听听听听听听 Came in [laughter], came in on 28th June, a European act. So, we鈥檝e Brexited, so what is it and does it even apply to the UK?
PAUL-听听听听听听听听听听听听听听听听 Well, as always with these things it鈥檚 not completely black and white. It does and it doesn鈥檛. Basically it鈥檚 not part of UK law because we鈥檙e no longer in the European Union, but it does apply to any UK companies or organisations who are doing business in or with the European Union, so that鈥檚 obviously quite a lot of companies based in the UK so it will have quite a big impact here. And you鈥檙e right, it came in on Saturday on 28th June, but it does have a two-year implementation period so it鈥檚 not going to be an overnight thing that we鈥檙e all suddenly going to notice, it鈥檚 going to be a bit of a slow burn.
EMMA-听听听听听听听听听听听听听听 What is it? What is it supposed to do?
PAUL-听听听听听听听听听听听听听听听听 It鈥檚 to make a uniform a more uniform approach to accessibility for digital and electronic products and services. So, that鈥檚 anything from things you might buy in the shops, so smartphones, right through to websites, software, ticketing platforms, all those kinds of things.
EMMA-听听听听听听听听听听听听听听 Does it include buying stuff in the shops with card machines? Will I be able to see buttons on card machines again? Because if I see another flat one with a flat screen and no speech I won鈥檛 be happy.
PAUL-听听听听听听听听听听听听听听听听 I don鈥檛 know the specific answer to that very niche question.
EMMA-听听听听听听听听听听听听听听 Oh sorry, so it鈥檚 not all about blindness, no?
PAUL-听听听听听听听听听听听听听听听听 [Laughs] but there are supposed to be universal standards for each area that the act takes responsibility for, so let鈥檚 hope so.
EMMA-听听听听听听听听听听听听听听 So, Paul, if it鈥檚 European, I mean I know you said that it will apply to companies that work within the UK, so for example I鈥檓 trying to book a flight to Ireland at the moment with a budget airline, that is European, not British, I鈥檓 struggling with their website, will their website have to be accessible in the next two years?
PAUL-听听听听听听听听听听听听听听听听 It will, yeah.
EMMA-听听听听听听听听听听听听听听 Boom! I love the EAA, European Accessibility Act. Alex Collins is here.
ALEX-听听听听听听听听听听听听听听听听 Hello Emma.
EMMA-听听听听听听听听听听听听听听 Hello. Our roving reporter on Access All. And Alex, you鈥檝e been to a hackathon, haven鈥檛 you?
ALEX-听听听听听听听听听听听听听听听听 Yes, I went to a hackathon at the University of East London, specifically the Rix Centre, which is a research centre focused at using tech to improve the lives of people with learning disabilities. And at this hackathon, now I鈥檓 not a very tech person as you probably know, tech isn鈥檛 my natural thing, so I wasn鈥檛 quite sure what to expect at a hackathon. But the idea of a hackathon normally is that you have people who are coders and they usually work together to find solutions. But this hackathon at the University of East London was quite different in the sense that they wanted to make it much more inclusive for people with disabilities. And so what you had was people with disabilities working with coders together. It was a very buzzy atmosphere. And what really struck me also was how global it was; the hackathon had people all the way from the United States, there was a big contingent from the University of Florida, but they also had people from New Zealand. And it just kind of gave it a really international flavour.
EMMA-听听听听听听听听听听听听听听 Global. Let鈥檚 get a taste of what happened:
[Clip]
CRAIG-听听听听听听听听听听听听听听 This is the big event. We are raising ways to allow for more disability access in day-to-day life.
MALE-听听听听听听听听听听听听听听听 We鈥檝e been thinking about sleep, stress, jobs, we鈥檝e been thinking about access to healthcare.
ALEX-听听听听听听听听听听听听听听听听 What hack would you like to see?
FEMALE-听听听听听听听听听听听 That stuff is in easy read so that we can all understand what is being asked of us.
FEMALE-听听听听听听听听听听听 My purpose of being here today is to be able to explore the integration of sign language, digital media and neurodiversity.
CRAIG-听听听听听听听听听听听听听听 So, a quick reminder, we鈥檙e now going back to our tables as where we look for solutions to the challenges that we鈥檝e found and we鈥檝e written on our pieces of paper.
MALE-听听听听听听听听听听听听听听听 So, instead of just coding something as you would in a traditional hackathon, we have much more diverse toolset that people are able to use to express their feelings, their emotions and their ideas.
FEMALE-听听听听听听听听听听听 On my table we have posters with writings and ideas and graphs and charts.
MALE-听听听听听听听听听听听听听听听 I鈥檓 19, I鈥檓 Gen Z, I鈥檓 rambunctious, I鈥檓 loud, I like to party, I like to do things that other people my age like to do.
MALE-听听听听听听听听听听听听听听听 It鈥檚 fundamentally a bunch of different people from all different walks of life.
ALEX-听听听听听听听听听听听听听听听听 And what do you think is the thing you鈥檇 like to hack? What things have you discussed about trying to solve?
MALE-听听听听听听听听听听听听听听听 What makes us stressed.
ALEX-听听听听听听听听听听听听听听听听 And what makes you stressed?
MALE-听听听听听听听听听听听听听听听 Traffic on the roads, crowds on the buses and the trains.
ALEX-听听听听听听听听听听听听听听听听 That sounds stressful.
CRAIG-听听听听听听听听听听听听听听 Good luck everyone.
[End of clip]
EMMA-听听听听听听听听听听听听听听 That sounds really kind of hands-on and crafty and kind of back to basics. There doesn鈥檛 sound to be like a load of coding going on there, and it sounds like people are doing lots of chatting and talking and having conversations about what would make their lives better. What鈥檚 the result of this hackathon, Alex? What are they hoping to achieve?
ALEX-听听听听听听听听听听听听听听听听 Well, as you said, they鈥檙e just wanting to make their lives better, and they were having these very active discussions about the things that really annoyed them. But as Craig Wilkie there, who we heard in the tape, he鈥檚 the research fellow who runs the hackathon, he said the theme was healthy living. So, they were all really focused on trying to figure out ideas and tech solutions about that theme. So, some of the things that I heard discussions about, there was a prototype thing of something called an iFit app, and they wanted to think about creative ways that you could make your gym experience better, but also make it more accessible for disabled people. Because there鈥檚 this notion that a lot of gyms often are they don鈥檛 focus necessarily on people with disabilities. And they tried to sort of de-emphasise necessarily that there was a competition, but they did have a vote at one point to decide which app to take forward to potentially be developed.
EMMA-听听听听听听听听听听听听听听 Who won? Who won?
ALEX-听听听听听听听听听听听听听听听听 The winning app was by team Munchies, and it was called Cook-Able 鈥� see what they did there?
PAUL-听听听听听听听听听听听听听听听听 Yeah.
ALEX-听听听听听听听听听听听听听听听听 And they write here that it鈥檚 an audio/visual app using AI to help make cooking accessible. It would be for people with learning difficulties, so they would have a sort of easy read format, which there would be pictures on one side and there鈥檇 be text on the other. They also would make sure the text itself was very short, and they would also have text to speech features as well.
EMMA-听听听听听听听听听听听听听听 And this is for recipes?
ALEX-听听听听听听听听听听听听听听听听 This is for recipes, yes, that people would either choose themselves with the ingredients that they鈥檝e bought, or they could preselect recipes. And I know myself I鈥檓 not a very organised person so I think I could benefit from that app by seeing the old mouldy vegetables in my fridge that probably haven鈥檛 been used and are out of date.
PAUL-听听听听听听听听听听听听听听听听 I love that idea. It鈥檚 a bit of a throwback to, I鈥檓 showing my age here, but if you remember Ready, Steady, Cook?
ALEX-听听听听听听听听听听听听听听听听 Of course.
EMMA-听听听听听听听听听听听听听听 Yeah, where you got a fiver and you had to bring in a bag of ingredients. Nowadays it鈥檇 be like a loaf of bread and a hunk of cheese and that鈥檇 be it. I think they got about ten ingredients in the olden days. Alex, thank you so much for coming in and telling me all about the amazing hackathon that you went to.
ALEX-听听听听听听听听听听听听听听听听 Thank you very much.
EMMA-听听听听听听听听听听听听听听 Paul, you鈥檝e been to hackathons before, haven鈥檛 you?
PAUL-听听听听听听听听听听听听听听听听 I have, I love a hackathon. And we got a little bit of the flavour of it there from that audio. I just love the really inclusive nature of them and that really kind of buzzy can-do attitude. If anyone鈥檚 not been to one of them before I thoroughly recommend them, they鈥檙e a lot of fun.
EMMA-听听听听听听听听听听听听听听 And have you had a hackathon where there鈥檚 been a really positive result, where something has gone much, much further than that room?
PAUL-听听听听听听听听听听听听听听听听 Yeah. Well, I was at one once where each team had a disabled person on the team, and obviously I was one of them, and the idea was to create a product that that person could use, perhaps that they encounter a problem with in daily life. So, my team came up with this product, it was a kettle. And you鈥檒l never guess the name of the kettle that we came up with, Emma. It was called, wait for it, this is a bit of branding genius, it was called Paul鈥檚 Kettle.
EMMA-听听听听听听听听听听听听听听 [Laughs] I mean, actually I thought Carter would have been the word they would have used there, [laughter] the Carter Kettle. But Paul鈥檚 Kettle. All right, what does Paul鈥檚 Kettle do?
PAUL-听听听听听听听听听听听听听听听听 So, it鈥檚 double walled so you didn鈥檛 get burnt when you pick it up, because at the minute all of my life whenever I poured water from a kettle I basically just have to lift it up and be quite quick and try not to splash boiling water on myself.
EMMA-听听听听听听听听听听听听听听 And is that because you can鈥檛 lift it on the handle?
PAUL-听听听听听听听听听听听听听听听听 Yes. So, it was double walled so you were able to grab it from anywhere without the surface of it being hot. But also the handle had a big kind of loop in it that I could fit my right arm through, so I was able to lift it on both sides. And it had a cutout on the other side. It鈥檚 quite hard to explain but basically it meant that I could lift鈥�
EMMA-听听听听听听听听听听听听听听 No, I can kind of understand it. Ergonomic for you so that you could use your arms to hold onto it, easily but safely.
PAUL-听听听听听听听听听听听听听听听听 Exactly. And then it was also designed so the water wouldn鈥檛 run down the side and burn you. It was very smart. And it actually progressed quite far; there was some interest in taking it to market. But as with all of these things, it kind of petered out and never came to fruition. But, you know, Paul鈥檚 Kettle could have been on the shelf in your local department store.
EMMA-听听听听听听听听听听听听听听 It鈥檚 beautifully low-tech as well. I love that it doesn鈥檛 have to be an app or a complicated computer programme; it can be an ergonomic kettle with a cool outer shell.
PAUL-听听听听听听听听听听听听听听听听 Totally.
EMMA-听听听听听听听听听听听听听听 Do you drink tea? How do you make tea now then?
PAUL-听听听听听听听听听听听听听听听听 Well, the same way I always have, is just lift it up and try not to burn myself [laughs]. I鈥檝e had various things over the years, they tried to give me these kettle tippers. I don鈥檛 know if you鈥檝e ever heard of these?
EMMA-听听听听听听听听听听听听听听 I鈥檝e heard of them but I鈥檝e never seen one in the wild. What are they?
PAUL-听听听听听听听听听听听听听听听听 But they only fit a very specific size of kettles and I just could never get on with them. Like with many things I鈥檝e just found my own way of doing it that is probably not the recommended or even safe way of doing it, but that鈥檚 just the way I do it.
EMMA-听听听听听听听听听听听听听听 I feel like the kettle tipper is one of those things that is an essential OT鈥檚 backpack, like the liquid level indicator for blind people.
PAUL-听听听听听听听听听听听听听听听听 Totally, yeah. One day we should make a list of all of these things that everyone has been offered at some point in their life.
EMMA-听听听听听听听听听听听听听听 So, I鈥檝e been offered by occupational therapists and other people a liquid level indicator, which means that you put it in a cup and it beeps once, so you put the milk in first, say, and it beeps once when you鈥o, what is it, you put the water in first? I mean, this is a debate in itself, isn鈥檛 it, for tea, milk or water in first. You put one of the liquid elements in first.
PAUL-听听听听听听听听听听听听听听听听 I mean, definitely the water, but carry on.
EMMA-听听听听听听听听听听听听听听 Yeah [laughter], and it beeps when it gets to a certain level of the cup, the liquid. And then you leave it in and you put the next bit in, the milk, and it beeps when it gets near to the top of the cup so that you don鈥檛 overpour. But I forget where it is half the time.
PAUL-听听听听听听听听听听听听听听听听 I was going to say, do you use this on a regular basis?
EMMA-听听听听听听听听听听听听听听 No, I use my finger.
PAUL-听听听听听听听听听听听听听听听听 [Laughs] I knew you were going to say that. I knew you were going to say you use your fingers.
EMMA-听听听听听听听听听听听听听听 Well, it鈥檚 just my finger鈥檚 always there, isn鈥檛 it, and it doesn鈥檛 need batteries.
PAUL-听听听听听听听听听听听听听听听听 You鈥檝e got, like, asbestos hands.
EMMA-听听听听听听听听听听听听听听 I sort of do. I pick food out of the air fryer and everything with my hands.
PAUL-听听听听听听听听听听听听听听听听 Oh my god!
EMMA-听听听听听听听听听听听听听听 I do, because I鈥檇 have to find the tongs, then I鈥檇 have to position the tongs properly, not seeing where the food is. And then if I鈥檇 wanted to get a handle on the food I鈥檇 need to maybe use two hands, use one to kind of put a fork in it to find out where it is, and then use the tongs with the other. But then I鈥檇 have to pull the basket out properly and set it on the surface, which would just take ages, and someone would be shouting and me and I鈥檇 be trying to鈥� You know, I just can鈥檛 be bothered.
PAUL-听听听听听听听听听听听听听听听听 It sounds like we鈥檝e both done remarkably well to get to our early to mid-40s without being horrifically scalded [laughs].
EMMA-听听听听听听听听听听听听听听 Yeah, and I鈥檓 very proud. Paul Carter, it鈥檚 been a pleasure as always.
PAUL-听听听听听听听听听听听听听听听听 Thank you so much.
EMMA-听听听听听听听听听听听听听听 Thank you for joining me. And thank you everyone for listening to this episode of Access All. You can get in touch with us, accessall@bbc.co.uk on the email about anything you鈥檝e heard this episode or any of the other ones on our feed, there are many, many. You can also send us a WhatsApp message, a voice message or a text message. Just put the word Access before it and send it to 0330 123 9480. And we鈥檙e on the socials as well, Paul Carter, we鈥檙e on X and we鈥檙e on Instagram @麻豆社AccessAll. Thank you for listening. See you soon. Bye.
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MALE-听听听听听听听听听听听听听听听 Newscast is the unscripted chat behind the headlines.
FEMALE-听听听听听听听听听听听 It鈥檚 informed but informal.
MALE-听听听听听听听听听听听听听听听 We pick the day鈥檚 top stories and we find experts who can really dig into them.
MALE-听听听听听听听听听听听听听听听 We use our colleagues in the newsroom and our contacts.
MALE-听听听听听听听听听听听听听听听 Some people pick up the phone rather faster than others.
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FEMALE-听听听听听听听听听听听 We sometimes literally run around the 麻豆社 building to grab the very best guests.
MALE-听听听听听听听听听听听听听听听 Join us for daily news chat.
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MALE-听听听听听听听听听听听听听听听 Newscast, listen on 麻豆社 Sounds.
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