Extra episode: Interview with the disability minister
On Access To Work, collaborating with disability groups, and more
Disability minister Sir Stephen Timms talks to Access All's Emma Tracey a month after the government climbdown on benefits changes.
They discuss the Access To Work scheme which Sir Stephen says is no longer the government's "best kept secret" because more people are using it.
Plus they talk about a newly announced set of five collaboration committees featuring people with lived experience of disability and other stakeholders on important areas like youth employment.
PRODUCERS: Emma Tracey, Ivana Davidovic
EDITOR: Damon Rose
MIXED BY: Dave O'Neill
Email accessall@bbc.co.uk or find us on social media.
Transcript
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31st July 2025
bbc.co.uk/accessall
Access All 鈥� Emergency Episode Minister
Presented by Emma Tracey
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EMMA-听听听听听听听听听听听听听听 Hello. I鈥檓 Emma Tracey, and this is an extra episode of the Access All podcast because we got an opportunity to speak to Sir Stephen Timms, the minister of state for disability and social security. I spoke to him听 a little bit earlier; here鈥檚 that interview now. I鈥檒l be back after this:
听听听听听听听听听听听听听听听听听听听听听听听听听听听 I have with me the minister of state for disability, health and work, Sir Stephen Timms. You鈥檙e very welcome to Access All.
STEPHEN-听听听听听听听听听 Thank you for having me.
EMMA-听听听听听听听听听听听听听听 Well, thank you for being here in the studio with me. I suppose it would be good to start by saying what does the minister of state for disability, health and work do? What鈥檚 your remit?
STEPHEN-听听听听听听听听听 The minister for disability and social security is the formal title. So, I鈥檓 responsible for government policy on disability and on working age social security benefits, Universal Credit, disability benefits of course, Personal Independence Payment, and the others. And as minister for disability I chair the cross-government meeting of the lead ministers for disability. We have a lead minister in every government department and we meet regularly, and so talk about policy across government that affects disabled people.
EMMA-听听听听听听听听听听听听听听 Let鈥檚 just talk a bit about the last few months, the Pathways to Work consultation paper came out, the bill, the Personal Independence Payments, Universal Credit bill came out. It鈥檚 been a bit messy and a bit emotional. There鈥檚 been a lot of heartache, a lot of fear, a lot of anger, not least in the House of Commons around this. Do you have any regrets about how it all played out?
STEPHEN-听听听听听听听听听 Well, there鈥檚 certainly been lots of debate, as you say, in parliament and outside parliament. And I think a lot of MPs had representations from their constituents expressing concerns about some of the things that were in the proposals to begin with. We listened to those concerns and, as you know, there was a proposal in what was originally called the Universal Credit and Personal Independence bill to limit eligibility for Personal Independence Payment to people who had four points on at least one of the daily living activities in Personal Independence Payment.
EMMA-听听听听听听听听听听听听听听 And that鈥檚 changed now.
STEPHEN-听听听听听听听听听 And that particular proposal gave rise to a lot of concern, so we decided not to go ahead with that; instead to set up a full review of the PIP assessment, which I will lead, that we鈥檒l co-produce with disabled people, disability organisations.
EMMA-听听听听听听听听听听听听听听 What does co-production mean to you?
STEPHEN-听听听听听听听听听 It means that we are going to be taking a lead from disabled people and representatives of disabled people in this work over the next year or so. And what we鈥檙e actually doing over the summer we鈥檙e going to be planning in detail how that process will be taken forward. What I envisage is there will be a fairly small group of ten people, something like that, who will work very closely with me as the minister for the period of this review, and they will have a lot of say and a lot of sway over the form that the recommendations emerge in.
EMMA-听听听听听听听听听听听听听听 Who?
STEPHEN-听听听听听听听听听 Well, we haven鈥檛 yet worked out who it鈥檚 going to be.
EMMA-听听听听听听听听听听听听听听 Who might it be do you think? Have you an idea?
STEPHEN-听听听听听听听听听 Well, that鈥檚 what we鈥檝e got to reflect on over the summer. I鈥檓 going to be talking to disability organisations, I mean, I do talk regularly to them of course, but I鈥檒l be talking specifically about this point so that we can set out in the detail both the process and how it鈥檚 going to work.
EMMA-听听听听听听听听听听听听听听 The amount of fear and anxiety around the time of the bill debates and disabled people having their say, are you concerned that that will cause any issues within the review of Personal Independence Payments, which of course is the non-means tested benefit for disabled people designed to cover some of the extra costs of being disabled? I mean, one of the words around co-production is valued and having people鈥檚 views valued. Do you worry the fear and there鈥檚 maybe a bit more mistrust in a government that disabled people were banking on to help them through this and to do benefits a bit differently?
STEPHEN-听听听听听听听听听 I think there鈥檚 been a lot of relief that that initial proposal is not being taken forward. I think people are pleased about that, and I understand why. What we鈥檝e seen is an example of democracy doing what it鈥檚 supposed to do: people express their concern to their MPs, the MPs express those concerns in parliament, and the policy鈥檚 changed as a result. I think that鈥檚 a positive example that we need now to build on in taking forward this review.
EMMA-听听听听听听听听听听听听听听 But it did upset a lot of people along the way, didn鈥檛 it, minister?
STEPHEN-听听听听听听听听听 There certainly was a lot of anxiety, yes, about what that would have done.
EMMA-听听听听听听听听听听听听听听 Yeah. The review itself what if it鈥檚 found by disabled people involved in it that people need more Personal Independence Payments and more people need it? You鈥檙e still looking to make cuts, aren鈥檛 you?
STEPHEN-听听听听听听听听听 Well, no. The review exercise that we鈥檙e undertaking is not designed to deliver spending cuts. I mean, we will certainly have to operate within the current projections for what spending is going to be.
EMMA-听听听听听听听听听听听听听听 And will you not be under a lot of pressure? I mean, there鈥檚 still cuts needing to be made. They wanted to make 5 billion, they鈥檙e not going to make that now. Obviously they鈥檒l look at other ways of making them. But will you not be under a lot of pressure in this?
STEPHEN-听听听听听听听听听 This review is not intended to deliver cuts. I think it鈥檚 quite important that that is well understood because I don鈥檛 think some of the people who we need to be involved in the review would be if they thought that that鈥檚 what it was for.
EMMA-听听听听听听听听听听听听听听 One of the thing about the bill that is going ahead, the Universal Credit element and the health element of Universal Credit, I鈥檝e spoken to learning disability charities over the last few days in preparation to speaking to you and they鈥檙e really, really worried about new claimants of the health benefit, the health element even, and how they鈥檙e going to manage on 拢47 less per week than current claimants when they鈥檙e already really struggling to make ends meet. And a report that was published on your own government website on 17th July said that 39% of households with a disabled person are struggling to meet basic needs financially. So, how can you justify that and how will they cope?
STEPHEN-听听听听听听听听听 Well, the key change we want to make is to increase the number of disabled people in work. We鈥檝e still got in the UK a lower employment rate than we had before the pandemic. And we鈥檙e unique in the G7 in that respect. This is specifically a UK problem that we have to fix. We鈥檝e got to open up the opportunity of employment for many more people. I鈥檝e spoken to many people with a learning disability who are desperate to be in a job. I鈥檝e seen some great examples of support being provided to make work possible for people with a learning disability. And we鈥檝e now secured a commitment to 拢3.8 billion over the lifetime of this parliament to invest in employment support, to open up the opportunity of work for hundreds of thousands of people I hope who haven鈥檛 been able to work up till now, who鈥檝e been on health and disability benefits who desperately want to work. Many of them say they could be in a job now if they had the support to make it possible for them. And we鈥檙e determined to give them that chance.
EMMA-听听听听听听听听听听听听听听 But that鈥檚 really interesting because that money has been pulled forward, it was supposed to be spent much later in the decade. And Michael Buchanan, 麻豆社 journalist, wrote an article not that long ago saying that someone in the DWP said that there was no pace or passion to make this employment support work, there weren鈥檛 enough people on it, it wasn鈥檛 ready. How are you going to get those people into work? How are you going to move that forward at the speed at which you want to?
STEPHEN-听听听听听听听听听 Well, it certainly wasn鈥檛 me that said that; there鈥檚 plenty of pace and passion where I am in the department and amongst the people that I鈥檓 working with. We鈥檙e absolutely determined鈥�
EMMA-听听听听听听听听听听听听听听 It鈥檚 a very tough job though.
STEPHEN-听听听听听听听听听 It is a tough job, and we are in a very difficult situation to still be all these years after the pandemic stopped, still have a lower employment rate than we had before the pandemic, when every other big industrialised country in the world has got back at least to where they were before. It shows how badly wrong the system has gone in the UK. We鈥檝e got to put it right.
EMMA-听听听听听听听听听听听听听听 We heard a lot of talk about cart before the horse when this bill was being debated. Some of your other reports that were also released on the government鈥檚 website on 17th July talked about the numbers of disabled people on waiting lists for health conditions. And there was even an article in 麻豆社 News this week about someone who鈥檚 been in bed for seven months because they鈥檙e not getting what they need, they鈥檙e disabled and they鈥檙e really, really struggling. And the 麻豆社 said they鈥檝e had over 250 families get in touch with them because they鈥檙e struggling to get the health and care. Should that not have been worked on harder before changing benefits and trying to have conversations with disabled people and move disabled people, get the disabled people the onus on them to get back into work?
STEPHEN-听听听听听听听听听 No, I don鈥檛 think we should be waiting to give opportunities to disabled people. I agree with you, we do need to put the health service right. We鈥檙e making a very big investment, 拢26 billion this year in the NHS. The other thing we need to improve though is the housing situation. There鈥檚 a huge amount this government has got to do, but I don鈥檛 agree that we should wait to fix the benefits system until all these other things are put right. We鈥檝e got to move forward and make progress on all of them at the same time. And that鈥檚 what we鈥檙e doing.
MUSIC-听听听听听听听听听听听听听听 We鈥檙e not just a podcast. Find Access All on social media and read our articles on the 麻豆社 News website.
EMMA-听听听听听听听听听听听听听听 Will we talk about Access to Work? It鈥檚 a government scheme designed to cover the extra costs of being disabled at work. The Disability Rights UK called it in its current form a shambles and is letting thousands of people down they say. What are the plans for that? Because a lot of us rely on it.
STEPHEN-听听听听听听听听听 Yes, it鈥檚 absolutely vital support as well. And the problem we鈥檝e had with Access to Work is a huge increase in the number of people wanting it and knowing about it. We used to talk about Access to Work as the best kept secret.
EMMA-听听听听听听听听听听听听听听 It was the best kept secret, yes!
STEPHEN-听听听听听听听听听 Absolutely. But it isn鈥檛 a secret anymore. Lots of people have found out about it, quite rightly, and are coming forward to apply. But because it鈥檚 a very personalised assessment involved in Access to Work we鈥檝e just really struggled to keep up with demand.
EMMA-听听听听听听听听听听听听听听 But isn鈥檛 personalised really, really important?
STEPHEN-听听听听听听听听听 What I鈥檓 hoping we can do is come up with an assessment which is perhaps a bit more rough and ready, a bit less personalised, but can be done more quickly so we can get the help to people more quickly and avoid these terribly long waits that we鈥檙e suffering at the moment.
EMMA-听听听听听听听听听听听听听听 Hmm, but if you鈥檝e met one blind person you鈥檝e met one blind person; if you鈥檝e met one autistic person you鈥檝e met one autistic person 鈥� their needs are different, they way they do things are different. How can you make an assessment that covers all when everyone has all these different things going on and different equipment needs?
STEPHEN-听听听听听听听听听 This is what we鈥檝e been consulting on. So, in the green paper, as you say, published in March we announced we wanted to review Access to Work. It hasn鈥檛 been reviewed very much since it was introduced in the mid-1990s. So, we want to have a fresh look at it, how we can do a better job, meet the needs of this much larger number of people now coming forward for it. And we have set up a collaboration committee to work with us, together with all the responses that we鈥檝e received from the consultation, to work with us on the detail of how Access to Work ought to look in the future. And we鈥檙e planning to announce the results of those deliberations later on this year.
EMMA-听听听听听听听听听听听听听听 It looks from what I鈥檓 reading that you want to move the onus onto employers and to get employers to pay for more of the adjustments and more of the things that disabled people need at work. I mean, I always thought about Access to Work as giving disabled people autonomy and agency around what they need at work, and not feeling like a burden towards their employer; they get the job on their own merits and then they get the support they need outside of their workplace. What鈥檚 happening? What鈥檚 changing there?
STEPHEN-听听听听听听听听听 Well, employers do have a legal obligation to provide reasonable adjustments to employees who need them. And it is important that employers honour those obligations.
EMMA-听听听听听听听听听听听听听听 So, let them pay for it. Would that not mean they鈥檝e -
STEPHEN-听 听 听 听 -听听Well, there is a legal obligation on employers to provide reasonable adjustments, so that is an existing well understood obligation that employers have. And it鈥檚 important that that obligation is fulfilled.
EMMA-听听听听听听听听听听听听听听 Yeah
STEPHEN-听听听听听听听听听 But beyond that there is support that is needed to make work a possibility for many, many people, and that鈥檚 what Access to Work is for. What we鈥檝e got to work out is how we can use that funding to support a larger number of people, given that so many people now, more people are coming forward to apply for it.
EMMA-听听听听听听听听听听听听听听 It needs a quicker fix though, doesn鈥檛 it? People are waiting weeks and months for taxi payments, for support worker payments, they鈥檙e waiting weeks and months for their grant to be approved. What鈥檚 going to happen in the meantime while all these committees are happening?
STEPHEN-听听听听听听听听听 We put a lot of extra staff onto Access to Work to try and get on top of these problems. I think the staff, well over 100 extra staff have moved on to Access to Work. We鈥檒l keep it under review. If there鈥檚 more we need to do in the short term then we will. But the key at the moment and the reason we set up this collaboration committee is to come up with a good new model for how Access to Work can continue to do a really good job in the future. And we do have to overcome these very long delays we鈥檝e got.
EMMA-听听听听听听听听听听听听听听 When will it be fixed though? Because people are actually losing jobs over this. It even feels like rules around Access to Work are changing under the radar. We鈥檝e had reports of people when it comes to their grants being reviewed that they鈥檙e getting less support for rules that they didn鈥檛 know about or even grants being stopped all together. When will it be fixed so that people aren鈥檛 frightened every time their support worker payment comes up that their support worker鈥檚 going to leave because they don鈥檛 get paid?
STEPHEN-听听听听听听听听听 No, we鈥檙e applying the policy as it currently is. We are looking at a future model, how the Access to Work should look in the future, and I鈥檓 hoping鈥�
EMMA-听听听听听听听听听听听听听听 So, the model hasn鈥檛 changed recently?
STEPHEN-听听听听听听听听听 The model hasn鈥檛 changed, no.
EMMA-听听听听听听听听听听听听听听 So, why are some people getting less even though they鈥檙e the same people in the same jobs, and when they get reviewed why are they getting less support?
STEPHEN-听听听听听听听听听 Well, I don鈥檛 know. You鈥檇 need to give me one or two examples of the thing that you鈥檙e talking about.
EMMA-听听听听听听听听听听听听听听 Jess Thom, Touretteshero, she works in the arts sector, she鈥檚 got Tourette鈥檚 syndrome, she鈥檚 a very famous performer, and hers was reduced to such a level that she鈥檚 not able to work now.
STEPHEN-听听听听听听听听听 Well, I鈥檇 be very happy to look it up. I mean, I think there are constraints in what Access to Work can provide. Maybe some time previously they haven鈥檛 always been applied. Perhaps they are now being applied. I鈥檒l very happily look at that particular case to see what鈥檚 happened there.
EMMA-听听听听听听听听听听听听听听 Yeah, it鈥檚 one of many. Particularly the loudest voice at the moment is the arts sector, but they鈥檝e got quite a loud voice anyway, but I am getting reports from other places about it feels like rules are changing. But also really anxious disabled people just wanting something to be done. You say there鈥檚 100 extra staff, that鈥檚 good news and very useful for us to hear. You know, disabled people once they get a job many of us are really anxious about keeping the job and about something happening that鈥檚 out with our control that stops us staying in our job.
STEPHEN-听听听听听听听听听 Yeah.
EMMA-听听听听听听听听听听听听听听 And something happening out with our control is a support worker who鈥檚 living hand to mouth, who鈥檚 on a zero-hours contract or who鈥檚 on a whatever type of contract, just not getting paid, the money not coming in, or employed by an employer and then the money not going to the employer and the employer coming to the disabled person. It鈥檚 such a鈥e鈥檙e all very, very passionate about it because we鈥檝e fought so hard to be in job. You want more people into work, I鈥檇 imagine you want people to stay in work.
STEPHEN-听听听听听听听听听 We certainly do, and we do need to have an Access to Work system that people can depend on, and that鈥檚 what we are determined to provide. The other thing that鈥檚 going to happen in the autumn is we鈥檙e going to have the report Sir Charlie Mayfield鈥檚 Keep Britain Working review, which is specifically about what more employers can do to open up opportunities in their workforce for people who are disabled people with a health impairment. And also how we can support in work people who run into health problems in the course of their employment, because it does seem that far too many people unnecessarily leave their jobs when they run into a health problem. When they didn鈥檛 need to if they had a bit of flexibility, a bit of extra support they could have stayed on, and that would have been in everybody鈥檚 interests if they鈥檇 been able to. So, I think Charlie Mayfield鈥檚 report is going to be an important step later this year too.
EMMA-听听听听听听听听听听听听听听 So, let鈥檚 go back to the collaboration committees that have been set up. So, we had the consultation, the pathways to work paper, we had the consultation that closed on June 30th. One of your collaboration committees is the youth unemployment area.
STEPHEN-听听听听听听听听听 That鈥檚 right.
EMMA-听听听听听听听听听听听听听听 And last time you were in I asked you whether people just became disabled when they鈥檙e turned 22. And the reason I asked you that was because there was a proposal on the table to only give the health element of Universal Credit to people who were over 22. Now, you have these committees in place now, you have this committee in place, you鈥檝e done the consultation, if people say they don鈥檛 want that will that be taken off the table?
STEPHEN-听听听听听听听听听 The argument is that the really crucial thing for young people, including disabled young people, is to have the opportunity for work early in their working life, not to be out of work for a long period, because that does such damage to people. And so could we use, instead of paying the extra benefit for people under 22, could we use that money to deliver more effectively our youth guarantee for disabled young people.
EMMA-听听听听听听听听听听听听听听 But how would they make ends meet?
STEPHEN-听听听听听听听听听 If we did that then there would certainly need to be some people for whom the health top-up would be provided, because there are some people for whom engagement with our youth guarantee would not be a realistic prospect. For others it may well be that the right thing to do would be to use the money to provide support rather than the cash benefit. We鈥檙e looking through the consultation responses at the moment and鈥�
EMMA-听听听听听听听听听听听听听听 Right, so they鈥檙e in and you're looking through them?
STEPHEN-听听听听听听听听听 Yeah.
EMMA-听听听听听听听听听听听听听听 And what鈥檚 the feeling around this then?
STEPHEN-听听听听听听听听听 At this stage I don鈥檛 know. No decision has yet been made.
EMMA-听听听听听听听听听听听听听听 So, mental health charities have also talked to me about the fact that in the debates around the bill and the SCC, severe conditions criteria where people will get the top amount, the amount that current claimants get for an extended period of time without assessment. There was a lot of talk about constant conditions and all of the time. And people are worried about maybe people who have very bad mental ill health, very mentally unwell a lot of the time but not all the time and cannot work, maybe people with epilepsy and certain types of seizures as well. What happens to people who aren鈥檛 the same level of unwellness all of the time, but cannot work because it鈥檚 so unpredictable? Where鈥檚 their safety net?
STEPHEN-听听听听听听听听听 Well, the question is whether the descriptor applies the whole time. It is not a requirement that the symptom should apply the whole time, but does the descriptor apply the whole time. That鈥檚 what determines whether the severe conditions criteria are met. This was a point that came鈥�
EMMA-听听听听听听听听听听听听听听 That鈥檚 the kind of鈥�
STEPHEN-听听听听听听听听听 鈥p and I think we were able to satisfy them in the debate that actually the arrangements that are in the bill are entirely satisfactory.
EMMA-听听听听听听听听听听听听听听 Okay, so the descriptor is the area, the type of issue.
STEPHEN-听听听听听听听听听 Yes.
EMMA-听听听听听听听听听听听听听听 And then there鈥檚 the levels within that of whether you can do it all the time or whether you鈥�?
STEPHEN-听听听听听听听听听 Whether you can do it reliably, repeatedly鈥�
EMMA-听听听听听听听听听听听听听听 Repeatedly, yeah.
STEPHEN-听听听听听听听听听 鈥nd in reasonable time.
EMMA-听听听听听听听听听听听听听听 That鈥檚 right. It鈥檚 very hard to remember all the lingo, isn鈥檛 it? [Laughs]
STEPHEN-听听听听听听听听听 It is, it is.
EMMA-听听听听听听听听听听听听听听 Tell me a little bit more about the collaboration committees. They cover five areas, what areas?
STEPHEN-听听听听听听听听听 They do. So, number one, Pathways to Work looking at how we can best use this very, very big commitment the government has made to employment support for people out of work on health and disability grounds, 拢3.8 billion over the course of this parliament. Absolutely vital that we make the best possible use of that to help people who are out of work at the moment, and we want the collaboration committee to advise us on how best to do that. The second one is on Right to Try. We want people who are out of work at the moment on health and disability grants to be confident about being able to go into a job knowing that if the job doesn鈥檛 work out they can go back to their benefits without any disadvantage afterwards. Now, we鈥檝e put that in the legislation. There may well be more we can do I think to enable people to be really confident that they鈥檙e not risking benefit support if they take up a job, because we want many more people to be willing to try, able to try a job. Access to Work we鈥檝e talked about. The age of PIP is the other one, whether you could change鈥�
EMMA-听听听听听听听听听听听听听听 Right, so whether it鈥檚 16 or 18.
STEPHEN-听听听听听听听听听 鈥�16 or 18, that鈥檚 right. And the last one is about young people in employment, including this question of the age 22 threshold. But also more widely how we can deliver our youth guarantee for young people across the country. We want to make sure that young people have got the chance to have a job.
EMMA-听听听听听听听听听听听听听听 Okay. So, how are you collaborating with disabled people on this? What are the committees made up of and how long are they meeting for etc?
STEPHEN-听听听听听听听听听 There are five of them. They鈥檝e got round about ten people on each of the committees. They鈥檝e had their first meeting. They鈥檒l have a meeting two or three hours or so every month between now and October. And at the end of that time we鈥檙e looking forward to having their recommendations and ideas for what we should do. Those will be presented to ministers and will be very influential in the final decisions that get made.
EMMA-听听听听听听听听听听听听听听 So, Stephen Timms, minister of state for disability and social security, thank you for speaking to me on the Access All podcast.
STEPHEN-听听听听听听听听听 Thank you for having me.
EMMA-听听听听听听听听听听听听听听 If you have anything to say about what you just heard there from the disability minister do get in touch. Our email address is accessall@bbc.co.uk, and our WhatsApp number is 0330 123 9480. Please subscribe to us if you haven鈥檛 already on 麻豆社 Sounds, because as you鈥檝e just discovered, you never know when a new episode will drop. See you next time. Bye.
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Access All: Disability News and Mental Health
Weekly podcast about mental health, wellbeing and disabled people.