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The grandma of a six-year-old girl who died after having a rare brain condition, says the Leicestershire Hospice which cared for her needs "every penny it can get".

Staff at Rainbows in Loughborough supported Claire and her granddaughter Nevaeh, but now needs to raise eight-and-a-half million pounds a year to cover its care costs.

Claire told Â鶹Éç Leicester's Ady Dayman that the support she received from Rainbows after Nevaeh died meant everything to her.