麻豆社

Stickler Syndrome can cause deafness, blindness and joint problems. Six-year-old Callum was diagnosed with the condition aged two.

From Redditch, parents Matt and Sam share how they've had to adapt their lives and are making a difference by fundraising as much as they can, including running the London Marathon.

Callum loves riding his bike to school, swimming, football and basketball. The genetic condition affects connective tissue with variable symptoms and can affect children despite neither parent being a carrier.