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Living with motor neurone disease

People with the condition tell us how it affects their lives

Former England rugby captain Lewis Moody recently revealed he had been diagnosed with Motor Neurone Disease (MND), and our conversations give an insight into how lives can be overturned by this muscle wasting condition.

Dr Mehboob in Canada was diagnosed five years ago and is now paralysed from the neck down. He is joined in conversation by his wife, Sophie, and Evy in Belgium, whose dad died last year 46 years after his diagnosis.

鈥淚鈥檓 at peace with the very clear knowledge that at any time this disease will take my life,鈥 Mehboob tells us. 鈥淚鈥檒l just live day by day appreciating every moment in my life, and that鈥檚 how I鈥檝e been able to cope with it.鈥

MND is incurable. Over time, muscles weaken 鈥 affecting movement, speech eating and breathing. People over 50 are most likely to get the disease but there is evidence that elite athletes are also disproportionately affected. We bring together Narayana in India with James and Gillian in the UK, who were all diagnosed in their 30s, to share their experiences of living with the condition.

Presenter: Rahul Tandon
麻豆社 producers: Laura Cress and Iqra Farooq
Boffin Media Producer: Richard Hollingham

An EcoAudio certified Boffin Media production in partnership with the OS team.

Photo/credit: Dr Mehboob and his family

Available now

23 minutes

Last on

Sun 26 Oct 2025 12:06GMT

Broadcasts

  • Fri 24 Oct 2025 19:06GMT
  • Sat 25 Oct 2025 08:06GMT
  • Sat 25 Oct 2025 15:06GMT
  • Sat 25 Oct 2025 18:06GMT
  • Sat 25 Oct 2025 23:06GMT
  • Sun 26 Oct 2025 12:06GMT