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This month - September - is Sickle Cell Awareness Month. This hereditary disease affects millions around the world, disproportionately affecting people of African descent. 300,000 are born with the condition annually with Sub-Saharan Africa bearing roughly 80 percent of the disease burden. In it's most extreme form sickle cell anaemia can tragically lead to death if the patient doesn't get the right medical treatment. Tola Dehinde lives with sickle cell disease, she is a blogger and activist and has a weekly column in Nigeria's Punch newspaper. This May saw the publication of Tola's book 'How to live with sickle cell.' She has been speaking to Focus on Africa's Bola Mosuro about what is it like to live with the disease.