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A man from Solihull's desperately campaigning on behalf of his wife who's one of only two people in the UK to have a rare form of a genetic disorder. Claire Edwards was diagnosed at the age of 44 with AARS2 leukodystrophy in 2019. It affects the development of the brain and nervous system - causing damage to nerve cells which gets worse over time. Claire's husband Paul has given his first radio interview to Â鶹Éç Radio WM.