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The Poundbury parents of a baby girl who died of a rare genetic condition are keeping her memory alive by fundraising for local charities. Daisy Smith died two years ago. She had a genetic condition so rare that it has no name - only two other cases are known of in the world. Over the last couple of years, mum Katie and dad Graham have raised over £7,000 for charity - including most recently taking part in a fitness competition in London.