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Available for over a year

Six-year-old George from Rugby was born with a rare lung condition that causes breathing problems due to faults in the ABCA3 gene; it also had an impact on George's ability to eat, so he has been fed through a feeding tube for most of his life. Just after his 6th birthday, his tube was removed, meaning that this will be his first Christmas without it! Rame, George's Mum has been speaking to Â鶹Éç CWR Lorna Bailey.