Episode details
Radio Nottingham,7 mins
'Uncoordinated care for my rare disease nearly proved fatal.'
Available for over a year
Charlotte Chapman-Hart lives with chiari malformation - type 1 and syringomyelia. She's now speaking out about the experience she had of diagnosis and treatment to change things for others in the future. A Department of Health and Social Care spokesperson said: “It is clear that Ms Chapman-Hart’s care fell far below acceptable standards. “Our UK Rare Diseases Framework aims to improve awareness of rare diseases among health care professionals and help patients get a final diagnosis faster."
Programme Website